NHLBI Data Stage Coordinating Center

此应用程序描述了我们建议的协调国家心脏、肺和 血液研究所(NHLBI)大数据赋权的数据存储、工具空间、访问和分析 (阶段)支持NHLBI愿景的计划，以利用美国国立卫生研究院(NIH)的数据 公共基础设施，以满足NHLBI研究人员的特定需求。作为NHLBI STAGECC，我们将管理和协调不同的数据阶段联盟团队和利益相关者 以协作开发新功能，从根本上改变数据和 可用于推进NHLBI研究和支持NHLBI战略愿景的计算资源。 具体地说，我们将努力有效和高效地建立一个数据科学平台(GToor等人，2016) 用于高价值的心、肺、血液和睡眠(HLBS)数据集(图表1)。STAGECC将在 NHLBI数据阶段联盟，以调整数据阶段愿景的公共视图，并将其 愿景转化为满足研究人员需求的实际和相关的实施。我们的团队全力以赴 到一种方法 培育了一个社区 实践，确保清晰 和透明的 沟通， 支持包容性的 和多样化 环境，是 有利于倾听 和识别 协同效应，传播 有效的想法，以及 提供平衡的领导力。作为一个团队，我们将根据我们的经验来协调 社区开发的软件应用程序以及我们作为领导者和协调员的多年服务 大型、多方面的协作。我们将应用既定的社区参与战略， 项目管理、沟通和报告。随着对HLBS疾病的研究进展和 数据阶段成熟，我们作为STAGECC的方法将适应和培育持续的社区 参与旨在创建和协调支持发现的解决方案。

This application describes our proposed approach to the coordination of the National Heart, Lung, and Blood Institute (NHLBI) Data Storage, Toolspace, Access and analytics for biG data Empowerment (STAGE) program in support of the NHLBI vision to leverage the National Institutes of Health (NIH) Data Commons infrastructure in order to address the specific needs of NHLBI researchers. As the NHLBI STAGECC, we will manage and coordinate the diverse Data STAGE Consortium teams and stakeholders in order to collaboratively develop novel functionality that will fundamentally change the data and computational resources available to advance NHLBI research and support the NHLBI Strategic Vision. Specifically, we will work to effectively and efficiently build a data-science platform (Getoor et al., 2016) for high-value heart, lung, blood, and sleep (HLBS) datasets ( Exhibit 1 ). The STAGECC will work across the NHLBI Data STAGE Consortium to align a common view of the Data STAGE vision and transform that vision into a practical and relevant implementation that meets researcher needs. Our team is committed to an approach that fosters a community of practice, ensures clear and transparent communication, supports an inclusive and diverse environment, is conducive to listening and identifying synergies, disseminates ideas effectively, and provides balanced leadership. As a team, we will build from our experience orchestrating community-developed software applications and our many years of service as leaders and coordinators of large, multifaceted collaboratives. We will apply established strategies for community engagement, project management, communication, and reporting. As research on HLBS disorders evolves and the Data STAGE matures, our approach as the STAGECC will adapt and foster continuous community engagement aimed at creating and coordinating solutions in support of discovery.