Enhancing NSHAP Caregiving & Social Network Measures to Contextualize Aging & Family Caregiving of AD/ADRD among English- and Spanish-speaking Latino Older Adults

项目摘要 研究人员估计，拉丁美洲AD患者的数量从2012年的379，000人增长到3.5%， 到2060年，亿。虽然家庭经常支持阿尔茨海默病患者的沟通， 阿尔茨海默病相关痴呆症（AD/ADRD），语言差异可能会造成特别复杂的情况 对于必须为具有以下情况的家庭成员导航占主导地位的英语语言系统的护理人员来说， 回到他们的母语。这个问题对拉丁美洲人来说尤其严重，因为大多数人都是双语者， 许多家庭正在（并将）受到复杂的生活需求的影响。通常，材料的翻译 有助于促进语言多样性群体获得服务。但为了反映潜在的文化差异， 识别目标语言中最好的世俗措辞和/或惯用表达，构建有效的 措施需要的不仅仅是翻译。此外，由于语言是公共的，它与 身份形成和文化适应，这可以影响人们的社会网络形成和加强语言 skills.可以说，对有效措施的分析也应该考虑社会（语言）背景如何可能 影响反应。 我们建议丰富国家社会生活，健康和老龄化项目（NSHAP），这是一项纵向研究， 老年人关注社会关系、身心健康、认知、感觉和运动功能， 和药物使用。NSHAP对拉丁美洲人进行了过采样，收集了英语和西班牙语的数据，并采访了 四轮（2005-06，2010-11，2015-16和2021-22）的受访者。然而，这些数据很少被 用于研究拉丁美洲老年人的健康和社交生活。还没有进行过研究，比较 说英语和西班牙语的拉丁美洲人的社交网络，我们对这些网络中的社交一无所知 网络. NSHAP缺乏关于日常生活中语言使用的问题， 和文化特点可能会妨碍获得保健和其他重要机构的服务。情境化 在讲西班牙语和英语的拉丁美洲老年人中，我们的目标是 增加NSHAP社交网络名册和回答问题，改善NSHAP西班牙语 采取措施，加强和社交网络，并管理加强NSHAP协议，以拉丁美洲AD/ADRD 西班牙语和英语的护理人员。

Project Summary Abstract Researchers estimate an 832 percent growth in the number of Latinos with AD from 379,000 in 2012 to 3.5 million by 2060. While families frequently support the communication in people with Alzheimer’s Disease and Alzheimer’s Disease Related Dementias (AD/ADRD), language differences can create particularly complex situations for caregivers who must navigate a dominant English-language system for a family member who has reverted to their first language. This issue is particularly acute for Latinos, given that the majority are bilingual, and many families are (and will be) affected by complex caregiving needs. Frequently, the translation of materials serves to promote service access for linguistically diverse groups. But to reflect underlying cultural nuances and to identify the best secular phrasing and/or idiomatic expression in the target language, constructing valid measures requires more than mere translation. Moreover, because language is communal, it is closely tied to identity formation and acculturation, which can affect people’s social network formations and reinforce language skills. Arguably, analyses of valid measures should also consider how the social (linguistic) context might influence responses. We propose to enrich the National Social Life, Health, and Aging Project (NSHAP), a longitudinal study of older adults focused on social relationships, physical and mental health, cognitive, sensory, and motor function, and medication use. NSHAP oversampled Latinos, collected data in English and Spanish, and interviewed respondents in four rounds (2005-06, 2010-11, 2015-16 and 2021-22). However, these data have rarely been used to study Latino older adults’ health and social lives. No research has been conducted that compares the social networks of English- and Spanish-speaking Latinos and we know nothing about caregiving within these networks. NSHAP lacks questions on language usage in daily life and contains few questions on how language and cultural characteristics might impede access to health and other important institutions. To contextualize aging and family caregiving of AD/ADRD among Spanish- and English-speaking Latino older adults we aim to augment the NSHAP social network roster and caregiving questions, improve NSHAP Spanish-language measures of caregiving and social networks, and administer the enhanced NSHAP protocols to Latino AD/ADRD caregivers in Spanish and English.