The Creation of ASDRA (Autism Spectrum Disorder Risk Alert)

描述(由申请人提供)：GeneticaLens是一家多媒体视频制作和技术服务公司，在自闭症谱系障碍(ASD)的早期检测方面与一批领先的研究人员联手创建了自闭症谱系障碍风险警报(ASDRA“)。ASDRA”是一个软件系统和集成的基于网络的工具包，可访问视频密集型数据库，通过帮助儿科医生遵循复杂的美国儿科学会(AAP)建议的三岁及以下儿童监测指南，促进自闭症谱系障碍(ASD)的早期评估。ASDRA“将被设计为与儿科办公室EMR计划兼容或作为独立应用程序工作。在第二阶段结束时，ASDRA”将提供：a.儿科医生家长共享工具(PPST！)利用交互式、视频增强的评估工具(IMCHAT)，以及跟踪设备和提醒/警报功能。B.由两部分组成的继续医学教育课程和测试，以培训医疗保健提供者有关自闭症的早期风险警报，以及当儿童被发现有风险时应遵循的转诊和后续方案；c.供儿科医生、家庭和其他感兴趣的各方持续使用的视频和数据的在线手册。与公共健康相关：美国儿科学会提出的新指南现在建议，所有儿童在18个月和24个月时都应该使用经过验证的工具进行自闭症谱系障碍(ASD)的筛查。现在有确凿的证据表明，对患有自闭症的婴幼儿进行强化早期干预是有效的(Dawson&Osterling，1997；国家研究理事会，2001；Myers，Johnson，和残疾儿童理事会，2007)。早期未被发现的儿童无法从这些早期干预中受益，其后果可能是终生的和毁灭性的。ASDRA“是一个基于网络、视频密集的软件和工具包，旨在帮助儿科实践更有效和高效地为3岁及以下儿童提供ASD的早期监测。ASDRA”将提高ASD的准确性，并加快早期识别ASD高危儿童的过程，以便能够尽早开始适当的干预，并改善被诊断为ASD的儿童的预后。

DESCRIPTION (provided by applicant): GeneticaLens, a multi-media video production and technology services company, has joined forces with a team of leading researchers in the early detection of Autism Spectrum Disorders (ASD) to create the Autism Spectrum Disorders Risk Alert (ASDRA"). ASDRA" is a software system and integrated web based toolset with access to a video-intensive database, that facilitates the early assessment of Autism Spectrum Disorders (ASD) by assisting pediatricians in following the complex American Academy of Pediatrics (AAP) recommended guidelines for the surveillance of children three years of age and under. ASDRA" will be designed to be compatible with pediatric office EMR programs or work as a stand-alone application. At the end of Phase II ASDRA" will provide: a. A Pediatrician Parent Share Tool (PPST!) with an interactive, video- enhanced assessment tool (the IMCHAT), as well tracking devices and reminder/alert features. b. A 2-part CME course and tests to train healthcare providers on the early risk alerts of ASD as well as the referral and follow-up protocols to follow when a child if found to be at-risk; c. An online manual of video and data for ongoing use by pediatricians, families, and other interested parties. PUBLIC HEALTH RELEVANCE: New guidelines put forth by the American Academy of Pediatrics now suggest that all children should be screened for Autism Spectrum Disorders (ASD) using a validated instrument at 18 and 24 months. There is now conclusive evidence demonstrating the effectiveness of intensive early intervention for infants and toddlers with ASD (Dawson & Osterling, 1997; National Research Council, 2001; Myers, Johnson, and the Council on Children with Disabilities, 2007). Children who are not detected at an early age cannot benefit from these early interventions, and the consequences can be life-long and devastating. ASDRA" a web-based, video-intensive software and toolset, is design to assist pediatric practices to more effectively and efficiently provide early surveillance of ASD for children 3 years of age and younger. ASDRA" will improve the accuracy and speed up the process of early identification of children at-risk for ASD so that the appropriate interventions can begin as early as possible and the outcomes of children diagnosed with ASD can be improved.