Designing and deploying a national registry to reduce disparity in access to stroke treatment and optimise time to treatment

该项目旨在设计和开发一个接受挽救生命治疗的中风患者的国家临床登记。该登记处的长期愿景是帮助减少居住在农村社区的患者与加拿大城市地区相比所接受的任何较差的护理。登记处将提供一个基础，以便能够与加拿大200多家中风医院跟踪和共享业绩。登记处将有几个主要目标：1.设计一个软件应用程序，以便在急诊科轻松收集数据。设计一个面向患者/家人的软件应用程序，使他们能够提供自我识别的详细信息3。为注册设计一个患者报告结果测量门户4。设计站点性能和数据完整性的交互式数据可视化5。将登记表分发给加拿大全国200多家中风医院6。衡量和缩小加拿大农村和城市医院在为中风患者提供救命治疗方面的差异这项工作将与以下两个组织合作完成：1.美敦力：一家设计和制造中风患者血栓回收/取出设备的大型医疗设备公司。Lumiio：一家专门从事患者登记和现实世界数据收集系统的小公司。

This project aims to design and develop a national clinical registry of stroke patients that receive life saving treatment. The long-term vision of this registry is to help reduce any inferior care received by patients that reside in rural communities compared to urban areas of Canada. The registry will provide a basis to enable tracking and sharing of performance with more than 200 stroke hospital across Canada.The registry will have several key objectives: 1. Design a software application that allows for easy data collection in the emergency department2. Design a patient/family facing software application that allows them to provide their self-identification details3. Design a patient reported outcomes measure portal for the registry4. Design engaging interactive data visualizations of site performance and data completeness5. Distribute the registry to over 200 stroke hospitals across Canada6. Gauge and reduce differences between rural and urban hospitals in access to life saving treatment for stroke patients in CanadaThis work will be completed in partnership with the following 2 organizations:1. Medtronic: a large medical device company that designs and manufactures devices for clot retrieval/removal in stroke patients.2. Lumiio: A small company that specialized in patient registries and real-world data collection systems.