The student patient alliance: development and formative evaluation of an initiative to support collaborations between patient and public involvement partners and doctoral students.
The student patient alliance: development and formative evaluation of an initiative to support collaborations between patient and public involvement partners and doctoral students.
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DOI：
10.1186/s41927-023-00359-2
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发表时间：
2023-10-03
期刊：
影响因子：
2.2
通讯作者：
Falahee, Marie
中科院分区：
文献类型：
--
作者：
Simons, Gwenda;Birch, Rebecca;Stocks, Joanne;Insch, Elspeth;Rijckborst, Rob;Neag, Georgiana;Mccolm, Heidi;Romaniuk, Leigh;Wright, Claire;Phillips, Bethan E.;Jones, Simon W.;Pratt, Arthur G.;Siebert, Stefan;Raza, Karim;Falahee, Marie
关键词：
虽然临床研究中患者和公众参与 (PPI) 的整合现已广泛并被推荐为标准做法，但在临床前、发现科学研究中实现有意义的 PPI 却更加困难。解决这个问题的一种可能方法是将 PPI 纳入发现科学研究生博士生的培训计划中。本文介绍了学生患者联盟 (SPA) 的发展和形成性评估，该联盟是伯明翰大学开发的一个项目，旨在将 PPI 合作伙伴与博士生联系起来。继伯明翰大学风湿病学研究小组成功试点 SPA 后，该计划在多个与关节炎/医学研究委员会 (MRC) 合作的卓越中心实施。博士生与 PPI 合作伙伴合作，为其提供初步信息和指导，然后鼓励他们共同开展研究和公众参与活动。六个月后，学生、他们的 PPI 合作伙伴以及每个中心的 PPI 协调员完成了有关他们参与 SPA 的简短调查。博士生和他们的 PPI 合作伙伴都认为参加 SPA 对理解、动机和沟通技巧产生了积极影响。学生们表示对 PPI 和患者优先事项的了解有所增加，并提高了公众参与技能。他们的 PPI 合作伙伴报告了与学生合作的积极影响。他们喜欢了解学生的研究并为学生的个人发展做出贡献。 PPI 协调员也强调了 SPA 的好处，但也指出了他们遇到的一些挑战，例如将学生与 PPI 合作伙伴匹配的困难。 SPA 受到学生和 PPI 合作伙伴的重视，此类举措很可能会在更广泛的范围内提高学生的 PPI 和公众参与技能以及对患者体验的认识。然而，机构层面需要适当的资源来支持更大规模地实施此类有效计划。在线版本包含可在 10.1186/s41927-023-00359-2 获取的补充材料。
While the integration of patient and public involvement (PPI) in clinical research is now widespread and recommended as standard practice, meaningful PPI in pre-clinical, discovery science research is more difficult to achieve. One potential way to address this is by integrating PPI into the training programmes of discovery science postgraduate doctoral students. This paper describes the development and formative evaluation of the Student Patient Alliance (SPA), a programme developed at the University of Birmingham that connects PPI partners with doctoral students. Following a successful pilot of the SPA by the Rheumatology Research Group at the University of Birmingham, the scheme was implemented across several collaborating Versus Arthritis / Medical Research Council (MRC) centres of excellence. Doctoral students were partnered with PPI partners, provided with initial information and guidance, and then encouraged to work together on research and public engagement activities. After six months, students, their PPI partners and the PPI coordinators at each centre completed brief surveys about their participation in the SPA. Both doctoral students and their PPI partners felt that taking part in SPA had a positive impact on understanding, motivation and communication skills. Students reported an increased understanding of PPI and patient priorities and reported improved public engagement skills. Their PPI partners reported a positive impact of the collaboration with the students. They enjoyed learning about the student’s research and contributing to the student’s personal development. PPI coordinators also highlighted the benefits of the SPA, but noted some challenges they had experienced, such as difficulties matching students with PPI partners. The SPA was valued by students and PPI partners, and it is likely that initiatives of this kind would enhance students’ PPI and public engagement skills and awareness of patients’ experiences on a wider scale. However, appropriate resources are needed at an institutional level to support the implementation of effective programmes of this kind on a larger scale. The online version contains supplementary material available at 10.1186/s41927-023-00359-2.
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