A Latent Class Analysis to Identify Variation in Caregivers' Preferences for their Child's Attention-Deficit/Hyperactivity Disorder Treatment: Do Stated Preferences Match Current Treatment?

A Latent Class Analysis to Identify Variation in Caregivers' Preferences for their Child's Attention-Deficit/Hyperactivity Disorder Treatment: Do Stated Preferences Match Current Treatment?
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DOI:
10.1007/s40271-016-0202-z
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发表时间:
2017-04
期刊:
The patient
影响因子:
--
通讯作者:
dosReis S
dosReis S
中科院分区:
其他
文献类型:
--
作者:
Ng X;Bridges JF;Ross MM;Frosch E;Reeves G;Cunningham CE;dosReis S

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调查照顾者对孩子注意力缺陷多动障碍(ADHD)护理的偏好变化,并确定他们所述的偏好是否与当前的护理管理一致。从马里兰州的儿科门诊诊所和倡导团体招募了一名4-14岁儿童的照顾者和多动症的照顾者。参与者完成了一项调查,收集人口统计数据,儿童的治疗,和照顾者的偏好,使用最好的最坏的缩放实验(情况2)。潜在类别分析用于识别不同的偏好片段,双变量分析用于比较片段成员资格与儿童目前接受ADHD治疗之间的关联。参与者(n = 184)主要是白色(68%)和孩子的母亲(84%)。大多数儿童患有ADHD两年或两年以上(79%)。照顾者的偏好分为两个部分:连续用药(36%)和最小药物(64%)。两组患者对何时给予药物治疗有非常不同的偏好(p < 0.001),但他们对以提供者为导向的干预和非药物干预有相似的偏好(对于照顾者行为培训,提供者沟通,提供者专业和自付费用,p > 0.05)。三分之一的样本没有接受首选的个性化教育计划,42%的最小药物组报告全年每周7天使用药物。虽然ADHD护理计划的行为管理培训和学校住宿方面对护理人员来说比循证药物更重要,但很少有家庭能够获得教育住宿。需要进一步的研究来澄清所述的护理偏好如何与实际实践环境中使用的治疗相一致。
To investigate variation in caregiver preferences for their child’s attention-deficit/hyperactivity disorder (ADHD) care and to determine if their stated preferences align with current care management. Caregivers of a child aged 4–14 years and in care for ADHD were recruited from pediatric outpatient clinics and advocacy groups across the state of Maryland. Participants completed a survey collecting demographics, the child’s treatment, and caregiver preferences—elicited using a best-worst scaling experiment (case 2). Latent class analysis was used to identify distinct preference segments and bivariate analyses were used to compare the association between segment membership with what the child was currently receiving for their ADHD. Participants (n = 184) were predominantly White (68%) and the child’s mother (84%). Most children had ADHD for 2 or more years (79%). Caregiver preferences were distinguished by two segments: continuous medication (36%) and minimal medication (64%). The two groups had very different preferences for when medication was administered (p < 0.001), but they had similar preferences for provider oriented and non-medication interventions (p > 0.05 for the caregiver behavior training, provider communication, provider specialty, and out-of-pocket costs). One third of the sample did not receive the preferred individualized education program and 42% of the minimal medication group reported using medication 7 days a week all year round. Although behavior management training and school accommodations aspects of an ADHD care plan are more important to caregivers than evidence-based medication, fewer families had access to educational accommodations. Further research is needed to clarify how stated preferences for care align with treatments used in actual practice settings.
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