Translating community-based participatory research into broadscale sociopolitical change: insights from a coalition of women firefighters, scientists, and environmental health advocates.

Translating community-based participatory research into broadscale sociopolitical change: insights from a coalition of women firefighters, scientists, and environmental health advocates.
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DOI:
10.1186/s12940-023-01005-7
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发表时间:
2023-08-30
影响因子:
6
通讯作者:
Morello-Frosch, Rachel
Morello-Frosch, Rachel
中科院分区:
环境科学与生态学2区
文献类型:
--
作者:
Ohayon, Jennifer Liss;Rasanayagam, Sharima;Rudel, Ruthann A.;Patton, Sharyle;Buren, Heather;Stefani, Tony;Trowbridge, Jessica;Clarity, Cassidy;Brody, Julia Green;Morello-Frosch, Rachel

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我们的报告,以社区为基础的参与性研究(CBPR)发起的女消防员,以分享成功的元素,可以为其他社区参与的研究具有指导意义。这项CBPR倡议,被称为女工生物监测协作(WWBC),是我们所知道的第一个调查职业暴露与健康结果之间联系的倡议,包括乳腺癌,专门针对女性消防员。为了反映那些最密切参与的人的经验和知识,本文由研究计划的领导人共同撰写。我们通过录制的会议、电子邮件和共享的在线文档收集领导者的意见。我们还与主要研究参与者和社区领导人进行了访谈(N = 10),以纳入其他观点。该倡议在实施大规模社会变革和推进科学知识方面取得成功的因素包括:(1)形成一个由受影响的社区领袖、工会、科学家和倡导组织组成的多元化联盟;(2)关注多个行动规模的影响,并在合作伙伴之间培养不同但相互支持的目标;(3)为研究参与者采取创新的沟通策略,(4)在科学研究中培养以预防为基础的精神,包括根据现有的危害证据及早采取行动,减少社区接触,以及(5)强调在所有研究阶段的共同学习。此外,我们还讨论了有助于成功的外部因素,包括提高科学家社区倡导伙伴关系的资助计划,并允许灵活地应对新出现的科学政策机会,以及响应工人关注的机构结构。虽然WWBC与其他成功的CBPR伙伴关系有共同的特点,但它也提出了提高CBPR在多个层面转化为变革的能力的方法。这包括将具有特殊技能和资源的合作伙伴纳入传统的研究人员-社区伙伴关系之外,这些伙伴关系是CBPR实践和学术关注的焦点,并设计研究,以便在研究的初始阶段支持社区行动。此外,我们强调外部结构性因素可能是CBPR成功的关键。这表明了批判性地审查和倡导更好地支持这项研究的体制因素的重要性。
We report on community-based participatory research (CBPR) initiated by women firefighters in order to share successful elements that can be instructive for other community-engaged research. This CBPR initiative, known as the Women Worker Biomonitoring Collaborative (WWBC) is the first we are aware of to investigate links between occupational exposures and health outcomes, including breast cancer, for a cohort of exclusively women firefighters. In order to be reflective of the experiences and knowledge of those most intimately involved, this article is co-authored by leaders of the research initiative. We collected leaders’ input via recorded meeting sessions, emails, and a shared online document. We also conducted interviews (N = 10) with key research participants and community leaders to include additional perspectives. Factors contributing to the initiative’s success in enacting broadscale social change and advancing scientific knowledge include (1) forming a diverse coalition of impacted community leaders, labor unions, scientists, and advocacy organizations, (2) focusing on impacts at multiple scales of action and nurturing different, yet mutually supportive, goals among partners, (3) adopting innovative communication strategies for study participants, research partners, and the broader community, (4) cultivating a prevention-based ethos in the scientific research, including taking early action to reduce community exposures based on existing evidence of harm, and (5) emphasizing co-learning through all the study stages. Furthermore, we discuss external factors that contribute to success, including funding programs that elevate scientist-community-advocacy partnerships and allow flexibility to respond to emerging science-policy opportunities, as well as institutional structures responsive to worker concerns. While WWBC shares characteristics with other successful CBPR partnerships, it also advances approaches that increase the ability for CBPR to translate into change at multiple levels. This includes incorporating partners with particular skills and resources beyond the traditional researcher-community partnerships that are the focus of much CBPR practice and scholarly attention, and designing studies so they support community action in the initial stages of research. Moreover, we emphasize external structural factors that can be critical for CBPR success. This demonstrates the importance of critically examining and advocating for institutional factors that better support this research.
基于社区的参与性研究:从儿童环境健康和疾病预防研究中心汲取的教训。
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