How Online Tests Contribute to the Support System for People With Cognitive and Mental Disabilities

How Online Tests Contribute to the Support System for People With Cognitive and Mental Disabilities
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在线测试如何为认知和精神障碍人士的支持系统做出贡献

DOI:
10.1145/3441852.3471229
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发表时间:
2021
期刊:
The 23rd International ACM SIGACCESS Conference on Computers and Accessibility
影响因子:
--
通讯作者:
Reinecke, Katharina
Reinecke, Katharina
中科院分区:
--
文献类型:
--
作者:
Li, Qisheng;Lee, Josephine;Zhang, Christina;Reinecke, Katharina

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全世界大约有三分之一的人在生活中的某个时候受到认知或精神障碍的影响,但人们在寻求支持和接受医疗保健专业人员的诊断时往往面临各种障碍。虽然先前的工作发现,这些残疾人使用在线测试和评估来评估自己,但这些测试是否以及如何有效地填补医疗保健和一般支持系统的空白仍然是未知的。为了找到答案,我们采访了17名有认知或精神障碍的成年人,了解他们使用在线测试的动机和经验。我们了解到,在线测试是一种重要的资源,可以解决专业诊断或疑似认知或精神残疾者的支持系统中的缺陷。特别是,在线测试可以降低专业诊断的障碍,提供有关残疾细微差别的宝贵信息,并支持人们形成残疾身份-这是积极接受自己的宝贵一步。我们的研究结果还揭示了阻碍已知或疑似健康状况的人充分利用在线测试的挑战和风险。基于这些发现,我们讨论了如何更好地利用在线测试来支持专业诊断之前和之后的认知或精神障碍患者。
Roughly 1 in 3 people around the world are affected by cognitive or mental disabilities at some point in their lives, yet people often face a variety of barriers when seeking support and receiving diagnosis from healthcare professionals. While prior work found that people with such disabilities assess themselves using online tests and assessments, it remains unknown whether and how effectively these tests fill gaps in healthcare and general support systems. To find out, we interviewed 17 adults with cognitive or mental disabilities about their motivation for and experience using online tests. We learned that online tests act as an important resource that address the shortcomings in support systems for people with professionally diagnosed or suspected cognitive or mental disabilities. In particular, online tests can lower barriers to a professional diagnosis, provide valuable information about the nuances of a disability, and support people in forming a disability identity – an invaluable step towards a positive acceptance of oneself. Our results also uncovered challenges and risks that prevent people with known or suspected health conditions from fully taking advantage of online tests. Based on these findings, we discuss how online tests can be better leveraged to support people with cognitive or mental disabilities before and after professional diagnosis.
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