The impact of orofacial clefts on quality of life and healthcare use and costs.

The impact of orofacial clefts on quality of life and healthcare use and costs.
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DOI:
10.1111/j.1601-0825.2009.01588.x
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发表时间:
2010-01
期刊:
影响因子:
3.8
通讯作者:
Cassell CH
Cassell CH
中科院分区:
医学3区
文献类型:
--
作者:
Wehby GL;Cassell CH

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口面裂是常见的出生缺陷,可能会对受影响的个人和家庭的健康,生活质量和社会经济福祉造成巨大负担。它们还导致显著的医疗保健使用和成本。了解口面裂对这些结果的影响对于确定未满足的需求和制定公共政策以减少个人,家庭和社会层面的口面裂负担非常重要。本文回顾并总结了最近研究的主要结果,这些研究评估了口面裂对这些结果的影响,重点是生活质量,社会经济结果,长期健康以及医疗保健的使用和成本。几项研究确定了口面裂对这些结果的负担增加,但一些研究结果是不一致的。总结了这一领域研究的主要局限性,沿着提出了未来研究的建议和方向。
Orofacial clefts are common birth defects that may impose a large burden on the health, quality of life, and socioeconomic well-being of affected individuals and families. They also result in significant healthcare use and costs. Understanding the impact of orofacial clefts on these outcomes is important for identifying unmet needs and developing public policies to reduce the burden of orofacial clefts at the individual, family and societal levels. This paper reviews and summarizes the main findings of recent studies that have evaluated the impact of orofacial clefts on these outcomes, with a focus on quality of life, socioeconomic outcomes, long-term health, and healthcare use and costs. Several studies identify an increased burden of orofacial clefts on these outcomes, but some of the findings are inconsistent. A summary of the primary limitations of the studies in this area is presented, along with recommendations and directions for future research.
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