'Pushing back': People newly diagnosed with dementia and their experiences of the Covid-19 pandemic restrictions in England.
'Pushing back': People newly diagnosed with dementia and their experiences of the Covid-19 pandemic restrictions in England.
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“反击”：英国新诊断出的痴呆症患者及其对 Covid-19 大流行限制的经历。
DOI：
10.1002/gps.5803
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发表时间：
2022-10
影响因子：
4
通讯作者：
DETERMIND team
中科院分区：
文献类型：
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作者：
Dixon J;Hicks B;Gridley K;Perach R;Baxter K;Birks Y;Colclough C;Storey B;Russell A;Karim A;Tipping E;Banerjee S;DETERMIND team
对痴呆症患者在 Covid-19 大流行中的经历的研究往往侧重于脆弱性和负面结果，这可能会导致痴呆症患者被定位为被动的言论。根据将痴呆症患者定位为“积极的社会行动者”的概念，我们旨在确定最近被诊断为痴呆症的患者所面临的与大流行相关的挑战，并研究他们积极应对和适应这些挑战的方式。对通过现有全国队列招募的 21 名最近被诊断患有痴呆症的人进行了深入访谈。使用框架对数据进行主题分析。主要挑战包括社交接触减少、孤独感和社交习惯丧失；难以获得和信任卫生服务；痴呆症不友好的做法；以及能够“走出”物理邻居的不同体验。痴呆症患者通过维持和扩展社交网络以及充分利用“点头熟人”来应对挑战；学习新技能、沟通和兴趣爱好；支持他人、参与互惠交流并重视与同伴的联系；寻求帮助和宣传，挑战和抵制对痴呆症不友好的做法；维持和适应习惯性的空间实践并决心“摆脱”；并对流行病和痴呆症采取类似的情绪应对策略。对痴呆症患者的支持，特别是在公共卫生危机期间，护理人员和服务面临压力时，应包括利用现有能力，适当支持新知识和技能的获取，通过提供指定专业人员、宣传和支持以及使用“报到电话”来建立“安全网”，并为痴呆症患者创造支持性的社会和环境环境，以维持其自身的福祉。直接对痴呆症患者进行的研究，探索他们的生活经历，有助于了解他们作为“积极的社会代理人”应对生活挑战的方式。最近被诊断出患有痴呆症的人报告了与 Covid-19 大流行相关的一系列挑战和负面经历，包括孤独和失去社交习惯；难以获得和信任卫生服务；痴呆症不友好的做法和挑战“走出去”到物理社区。他们通过维护和扩展社交网络来应对挑战；学习新技能；支持他人并参与相互交流，包括与同行的交流；寻求帮助和宣传，挑战和抵制对痴呆症不友好的做法；维持和调整习惯的空间实践；并采用一系列情绪应对策略。在公共卫生危机期间对痴呆症患者的支持应旨在创造社会和环境环境，使痴呆症患者能够帮助维持自己的福祉。
Research into people with dementia's experiences of the Covid‐19 pandemic has tended to focus on vulnerabilities and negative outcomes, with the risk of reproducing a discourse in which people with dementia are positioned as passive. Informed by concepts positioning people with dementia as ‘active social agents’, we aimed to identify the pandemic‐related challenges faced by people recently diagnosed with dementia and examine the ways in which they actively coped with, and adapted to, these challenges. In‐depth interviews with 21 people recently diagnosed with dementia, recruited through an existing national cohort. Data was analysed thematically using Framework. Key challenges included reduced social contact, loneliness and loss of social routines; difficulties accessing and trusting health services; dementia‐unfriendly practices; and disparate experiences of being able to ‘get out’ into the physical neighbourhood. People with dementia responded to challenges by maintaining and extending their social networks and making the most of ‘nodding acquaintances’; learning new skills, for communication and hobbies; supporting others, engaging in reciprocal exchange and valuing connection with peers; seeking help and advocacy and challenging and resisting dementia‐unfriendly practices; maintaining and adapting habitual spatial practices and being determined to ‘get ou t’; and employing similar emotional coping strategies for the pandemic and dementia. Support for people with dementia, especially during public health crises when carers and services are under pressure, should involve utilising existing capacities, appropriately supporting the acquisition of new knowledge and skills, ‘safety‐netting’ through the availability of a named professional, advocacy and support and use of ‘check‐in calls’ and creating supportive social and environmental circumstances for people with dementia to sustain their own well‐being. Research conducted directly with people with dementia, exploring their lived experiences, is helpful for understanding the ways in which they respond as ‘active social agents’ to challenges in their lives. People recently diagnosed with dementia reported a range of challenges and negative experiences associated with the Covid‐19 pandemic including loneliness and loss of social routines; difficulties in accessing and trusting health services; dementia‐unfriendly practices and challenges ‘getting out’ into the physical neighbourhood. They responded to challenges by maintaining and extending social networks; learning new skills; supporting others and engaging in reciprocal exchange, including with peers; seeking help and advocacy and challenging and resisting dementia‐unfriendly practices; maintaining and adapting habitual spatial practices; and employing a range of emotional coping strategies. Support for people with dementia during public health crises should aim to create social and environmental circumstances that enable people with dementia to help sustain their own well‐being.
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影响因子：
4.1
作者：
Low LF;Purwaningrum F
通讯作者：
Purwaningrum F
影响因子：
2.4
作者：
Gridley, Kate;Brooks, Jenni;Glendinning, Caroline
通讯作者：
Glendinning, Caroline
影响因子：
2.9
作者：
Mc Parland, Patricia;Anthea, Fiona Kelly;Innes, Anthea
通讯作者：
Innes, Anthea
影响因子：
7
作者：
Miranda-Castillo, Claudia;Woods, Bob;Orrell, Martin
通讯作者：
Orrell, Martin
影响因子：
14
作者：
通讯作者：
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