The Role of Family Members in Psychiatric Deep Brain Stimulation Trials: More Than Psychosocial Support.
The Role of Family Members in Psychiatric Deep Brain Stimulation Trials: More Than Psychosocial Support.
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DOI：
10.1007/s12152-023-09520-7
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发表时间：
2023
期刊：
影响因子：
1.4
通讯作者：
Widge, Alik S.
中科院分区：
文献类型：
--
作者：
Boulicault, Marion;Goering, Sara;Klein, Eran;Dougherty, Darin;Widge, Alik S.
关键词：
家庭成员可以为参与临床试验的个人提供重要支持。在脑深部电刺激（DBS）的“最新前沿”研究中-使用DBS治疗精神疾病-家庭成员的支持经常被列为试验招募的标准。尽管家庭成员的重要性，DBS的精神疾病定性伦理研究几乎完全集中在DBS收件人的观点和经验。这项定性研究是第一个包括DBS接收者和他们的家庭成员作为访谈参与者之一。使用二元主题分析的方法，需要个人和关系作为分析单位，本研究分析了复杂的方式，家庭关系可以影响DBS试验的参与，以及如何DBS试验的参与反过来影响家庭关系。基于这些发现，我们提出了改进研究设计的方法，以更好地考虑家庭关系，并更好地支持家庭成员在DBS试验中发挥复杂的重要作用。在线版本包含补充材料，可通过10.1007/s12152-023-09520-7获得。
Family members can provide crucial support to individuals participating in clinical trials. In research on the “newest frontier” of Deep Brain Stimulation (DBS)—the use of DBS for psychiatric conditions—family member support is frequently listed as a criterion for trial enrollment. Despite the significance of family members, qualitative ethics research on DBS for psychiatric conditions has focused almost exclusively on the perspectives and experiences of DBS recipients. This qualitative study is one of the first to include both DBS recipients and their family members as interview participants. Using dyadic thematic analysis—an approach that takes both the individuals and the relationship as units of analyses—this study analyzes the complex ways in which family relationships can affect DBS trial participation, and how DBS trial participation in turn influences family relationships. Based on these findings, we propose ways to improve study designs to better take family relationships into account, and better support family members in taking on the complex, essential roles that they play in DBS trials for psychiatric conditions. The online version contains supplementary material available at 10.1007/s12152-023-09520-7.
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