Mobile health use predicts self-efficacy and self-management in adolescents with sickle cell disease.
Mobile health use predicts self-efficacy and self-management in adolescents with sickle cell disease.
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DOI：
10.1093/tbm/ibab041
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发表时间：
2021-10-23
影响因子：
3.6
通讯作者：
Crosby LE
中科院分区：
文献类型：
--
作者：
Hood AM;Nwankwo C;Walton A;McTate E;Joffe N;Quinn CT;Britto MT;Peugh J;Mara CA;Crosby LE
患有镰状细胞病（SCD）的青少年和年轻人（AYA）在从儿科到成人护理的过程中遇到了健康挑战。自我管理（即，优先化和完成目标）和自我效能（即，但是患有SCD的AYA患者往往缺乏这些技能。移动的健康（mHealth）技术（例如，智能手机和平板电脑）为AYA提供了一种监控和跟踪症状、改变行为和完成目标的方法。我们将mHealth应用程序纳入了一项小组干预（SCThrive），以了解更频繁地使用应用程序的组件是否会增加13-21岁患有SCD的AYA的自我管理和自我效能。我们发现，更频繁地登录应用程序与更好的情绪症状和更低的疼痛评分有关。经常登录应用程序的AYA报告了更多的自我管理技能和自我效能。我们的研究结果表明，使用移动的应用程序的患有SCD的AYA患者的临床益处。镰状细胞病（SCD）与青春期经常恶化的重大健康挑战相关。患有SCD需要大量的自我管理，而移动的健康（mHealth）在评估和改变行为以改善健康结果方面具有相当大的潜力。我们整合了一个移动的应用程序作为小组干预（SCThrive）的辅助工具，并假设更多地参与mHealth应用程序将提高SCD青少年和年轻人（AYA）的自我管理和自我效能。26名年龄在13-21岁之间的AYA（54%为女性; 46%为HbSS基因型;均为非裔美国人/黑人）每周接受六次小组会议（三次面对面，三次在线）。为参与者提供了移动的应用程序（iManage for SCD），以记录其自我管理目标的进展，并记录疼痛和情绪症状。过渡准备评估问卷（TRAQ-5）评估自我管理技能，患者激活措施（PAM-13）评估基线和治疗后的自我效能。更频繁地登录应用程序与更高的情绪评分（r = 0.54，CI[0.18，0.77]，p = 0.006）和更低的疼痛评分（r =-0.48，CI[-0.77，-0.02]，p = 0.04）相关。回归分析表明，在控制基线评分后，应用程序的登录次数预测了自我管理技能（p = 0.05，η2 = 0.17）和可能的自我效能（p = 0.08，η2 = 0.13）。我们的研究结果表明，对于患有SCD的AYA来说，保持参与mHealth可能具有挑战性，但对于那些参与的人来说，与自我管理，自我效能以及管理疼痛和情绪有关的显着好处。
Adolescents and young adults (AYA) with sickle cell disease (SCD) experience health challenges during the move from pediatric to adult care. Self-management (i.e., prioritizing and completing goals) and self-efficacy (i.e., confidence) are needed to manage a chronic disease effectively, but AYA with SCD often lack the skills. Mobile health (mHealth) technology (e.g., smartphones and tablets) present a way for AYA to monitor and track symptoms, change behaviors, and complete goals. We included a mHealth app into a group intervention (SCThrive) to see if using components of the app more frequently increased self-management and self-efficacy for AYA with SCD aged 13–21 years. We found that logging on to the app more often was related to better mood symptoms and lower pain ratings. AYA who logged onto the app more often reported more self-management skills and self-efficacy. Our findings indicate clinical benefits for those AYA with SCD who engaged with the mobile app. Sickle cell disease (SCD) is associated with significant health challenges that often worsen during adolescence. Living with SCD requires a substantial amount of self-management and mobile health (mHealth) holds considerable promise for assessing and changing behaviors to improve health outcomes. We integrated a mobile app as an adjunct to a group intervention (SCThrive) and hypothesized that more engagement with the mHealth app would increase self-management and self-efficacy for adolescents and young adults (AYA) with SCD. Twenty-six AYA ages 13–21 years (54% female; 46% HbSS genotype; all African-American/Black) received six weekly group sessions (three in-person, three online). Participants were provided with the mobile app (iManage for SCD) to record progress on their self-management goals and log pain and mood symptoms. The Transition Readiness Assessment Questionnaire (TRAQ-5) assessed self-management skills and the Patient Activation Measure (PAM-13) assessed self-efficacy at baseline and post-treatment. Logging on to the app more frequently was associated higher mood ratings (r = .54, CI[.18, .77], p = .006) and lower pain ratings (r = −.48, CI[−.77, −.02], p = .04). Regression analyses demonstrated that after controlling for scores at baseline, the number of logins to the app predicted self-management skills (p = .05, η2 = .17) and possibly self-efficacy (p = .08, η2 = .13). Our study findings indicate that it can be challenging to maintain engagement in mHealth for AYA with SCD, but for those who do engage, there are significant benefits related to self-management, self-efficacy, and managing pain and mood.
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影响因子：
3.2
作者：
McPherson, Marianne;Thaniel, Lisa;Minniti, Caterina P.
通讯作者：
Minniti, Caterina P.
影响因子：
3.7
作者：
Iribarren SJ;Cato K;Falzon L;Stone PW
通讯作者：
Stone PW
DOI：
10.1016/s0889-8588(05)70398-1
发表时间：
1996-12-01
影响因子：
2.4
作者：
Kinney, TR;Ware, RE
通讯作者：
Ware, RE
影响因子：
5.7
作者：
Greene, Jessica;Hibbard, Judith H.
通讯作者：
Hibbard, Judith H.
影响因子：
7.6
作者：
Crosby, Lori E.;Joffe, Naomi E.;Britto, Maria T.
通讯作者：
Britto, Maria T.