Understanding the Effectiveness and Feasibility of a Family Navigator Program for Parents of Children With Autism.

Understanding the Effectiveness and Feasibility of a Family Navigator Program for Parents of Children With Autism.
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DOI:
10.1352/1934-9556-61.5.426
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发表时间:
2023-10-01
影响因子:
1.8
通讯作者:
Kim, Julianna
Kim, Julianna
中科院分区:
医学3区
文献类型:
--
作者:
Burke, Meghan M.;Cheung, W. Catherine;Kim, Julianna

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系统导航可能很困难,特别是对于低资源家庭(即,“低收入”家庭或符合下列指标之一的家庭:母亲只有高中文凭或更低学历;主要照顾者失业;或家庭接受政府援助)。导航员可以帮助家庭获得服务;但是,导航员的培训情况尚不清楚。本研究的目的是确定支持父母访问和导航服务(SPANS),一个计划,以开发导航的有效性和可行性。共有19名自闭症儿童的低资源父母参加了SPANS。参与者表现出显着提高有关自闭症服务的知识和感知倡导其他家庭和系统性的变化。有高出勤率,低损耗,高接受度,和高保真度。的影响进行了讨论。
Systems navigation can be difficult, especially for low-resourced families (i.e., families who are “low income” or meet one of the following indicators: mother has a high school diploma or less; primary caregiver is unemployed; or the family receives governmental assistance). Navigators may help families access services; however, the training of navigators is unclear. The purpose of this study was to determine the effectiveness and feasibility of Supporting Parents to Access and Navigate Services (SPANS), a program to develop navigators. Altogether, 19 low-resourced parents of autistic children participated in SPANS. Participants demonstrated significantly improved knowledge about autism services and perceived advocacy for other families and systemic change. There was high attendance, low attrition, high acceptability, and high fidelity. Implications are discussed.
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