Empowering families to take on a palliative caregiver role for patients with cancer in India: Persistent challenges and promising strategies.
Empowering families to take on a palliative caregiver role for patients with cancer in India: Persistent challenges and promising strategies.
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DOI：
10.1371/journal.pone.0274770
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发表时间：
2022
期刊：
影响因子：
3.7
通讯作者：
中科院分区：
文献类型：
--
作者：
印度需要姑息治疗 (PC) 的癌症患者人数正在增加。家庭护理人员将是提供 PC 的护理团队的重要成员。我们的目的是描述提供者对印度家庭在承担姑息护理角色时所面临的挑战的看法。此分析的数据来自对 PC-PAICE 项目的评估，该项目是印度 PC 的一系列质量改进干预措施。我们在 7 个地理位置和结构不同的环境中对组织领导者和临床团队成员进行了 44 次深入的半结构化访谈。通过主题内容分析，结合演绎和归纳方法确定了与护理人员角色相关的主题。担任 PC 护理角色的背景挑战包括家庭成员对 PC 和癌症的了解有限、护理责任培训的必要性以及寻求治愈性治疗而非姑息性治疗的文化偏好。一些后勤挑战包括家庭护理人员在承担护理角色的期望时可能遇到的财务、时间和心理健康限制。促进家庭接受 PC 供应的策略包括采用家庭护理模式、将他们与非政府组织提供的服务联系起来、利用志愿者和社会工作者来培养 PC 意识和培训，以及具体回应家庭的要求。了解并解决家庭在扮演护理人员角色时面临的各种挑战是在印度提供和扩展 PC 的重要步骤。当地发起的质量改进项目可以成为根据具体情况应对这些挑战的一种方法。
The population of patients with cancer requiring palliative care (PC) is on the rise in India. Family caregivers will be essential members of the care team in the provision of PC. We aimed to characterize provider perspectives of the challenges that Indian families face in taking on a palliative caregiving role. Data for this analysis came from an evaluation of the PC-PAICE project, a series of quality improvement interventions for PC in India. We conducted 44 in-depth semi-structured interviews with organizational leaders and clinical team members at seven geographically and structurally diverse settings. Through thematic content analysis, themes relating to the caregivers’ role were identified using a combination of deductive and inductive approaches. Contextual challenges to taking up the PC caregiving role included family members’ limited knowledge about PC and cancer, the necessity of training for caregiving responsibilities, and cultural preferences for pursuing curative treatments over palliative ones. Some logistical challenges include financial, time, and mental health limitations that family caregivers may encounter when navigating the expectations of taking on the caregiving role. Strategies to facilitate family buy-in for PC provision include adopting a family care model, connecting them to services provided by Non-Governmental Organizations, leveraging volunteers and social workers to foster PC awareness and training, and responding specifically to family’s requests. Understanding and addressing the various challenges that families face in adopting the caregiver role are essential steps in the provision and expansion of PC in India. Locally initiated quality improvement projects can be a way to address these challenges based on the context.
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影响因子：
1.1
作者：
Khosla D;Patel FD;Sharma SC
通讯作者：
Sharma SC
影响因子：
2.6
作者：
Chittem, Mahati;Norman, Paul;Harris, Peter
通讯作者：
Harris, Peter
影响因子：
4.5
作者：
Mathur, Prashant;Sathishkumar, Krishnan;Roselind, Francis Selvaraj
通讯作者：
Roselind, Francis Selvaraj
DOI：
10.15766/mep_2374-8265.10448
发表时间：
2016-09-01
影响因子：
--
作者：
Cruz-Oliver, Dulce M;Ellis, Kirsten;Sanchez-Reilly, Sandra
通讯作者：
Sanchez-Reilly, Sandra
影响因子：
2.8
作者：
Emanuel, Natalia;Simon, Melissa Andrea;Emanuel, Linda
通讯作者：
Emanuel, Linda