Asian Americans and Pacific Islanders' perspectives on participating in the CARE recruitment research registry for Alzheimer's disease and related dementias, aging, and caregiving research.

Asian Americans and Pacific Islanders' perspectives on participating in the CARE recruitment research registry for Alzheimer's disease and related dementias, aging, and caregiving research.
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DOI:
10.1002/trc2.12195
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发表时间:
2021
期刊:
Alzheimer's & dementia (New York, N. Y.)
影响因子:
--
通讯作者:
Meyer OL
Meyer OL
中科院分区:
其他
文献类型:
--
作者:
Ta Park V;Grill JD;Zhu J;Nguyen K;Nam B;Tsoh J;Kanaya A;Vuong Q;Bang J;Nguyen NCY;Cho IH;Gallagher-Thompson D;Hinton L;Meyer OL

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这项研究引出了亚裔美国人和太平洋岛民 (AAPI) 对参与老龄化、阿尔茨海默病和相关痴呆症 (ADRD) 以及护理研究招募登记的招募策略/信息的看法。 CARE(AAPI 研究和教育协作方法)采用混合方法设计,以不同语言与 AAPI 文化群体(亚裔印度人、中国人、菲律宾人、日本人、韩国人、萨摩亚人、越南人)进行了 14 个焦点小组(N = 123)。进行了描述性统计和专题定性分析。参与者的平均年龄为 54 岁(中位数:61 岁;范围 18-80 岁),其中 66% 为女性,81% 为外国出生。招聘考虑的主题如下:(1) 在特定文化空间中进行文化/语言上适当的外展活动,(2) 研究参与的动机,以及 (3) 外展和招募方法的途径。在每个主题中,具体策略/方法都存在种族差异,这些差异反映为子主题。招募和信息传递策略应针对每个目标 AAPI 群体进行独特定制,并充分了解促进研究参与的文化/语言因素,以增加 AAPI 参与 ADRD、老龄化和护理人员相关研究。 
This study elicited Asian Americans and Pacific Islanders’ (AAPI) perspectives about recruitment strategies/messaging for participation in an aging, Alzheimer's disease and related dementias (ADRD), and caregiving research recruitment registry. Using a mixed methods design, CARE (Collaborative Approach for AAPI Research and Education) conducted 14 focus groups (N = 123) with AAPI cultural groups (Asian Indian, Chinese, Filipino, Japanese, Korean, Samoan, Vietnamese) in different languages. Descriptive statistics and thematic qualitative analyses were conducted. Mean age of participants was 54 years (median: 61; range 18–80), 66% were female, and 81% were foreign‐born. Themes of consideration for recruitment emerged: (1) culturally/linguistically appropriate outreach in culturally specific spaces, (2) motivations for research participation, and (3) approaches to outreach and recruitment methods. Within each of these themes, there were ethnic differences in specific strategies/approaches reflected as subthemes. Recruitment and messaging strategies should be tailored uniquely for each targeted AAPI group, with a thorough understanding of the cultural/linguistic factors that facilitate research participation to increase AAPI participation in ADRD, aging, and caregiver‐related research. 
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