Cohort profile: Born in Wales-a birth cohort with maternity, parental and child data linkage for life course research in Wales, UK.
Cohort profile: Born in Wales-a birth cohort with maternity, parental and child data linkage for life course research in Wales, UK.
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队列概况：出生于威尔士 - 与孕产，父母和儿童数据联系的出生队列，用于英国威尔士的生命课程研究。
DOI：
10.1136/bmjopen-2023-076711
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发表时间：
2024-01-18
期刊：
影响因子：
2.9
通讯作者：
Brophy, Sinead
中科院分区：
文献类型：
--
作者：
Jones, Hope;Seaborne, Mike J.;Kennedy, Natasha L.;James, Michaela;Dredge, Sam;Bandyopadhyay, Amrita;Battaglia, Adele;Davies, Sarah;Brophy, Sinead
使用威尔士的国家孕产妇和出生数据集作为核心数据集，我们将相关数据集链接起来，以创建一个更完整和全面的整个国家出生队列。在个人一级，匿名身份者的数据与安全匿名信息链接数据库内的保健、社会保健和教育数据相关联。每个人都被分配了一个加密的匿名链接字段;该字段用于跨数据集链接匿名个人。我们介绍了核心数据集中可用的描述性数据，以及数据库在初始开发阶段之后的未来扩展计划。2011年至2023年的描述性信息来自SAIL的国家社区儿童健康数据库（NCCHD）。这个综合数据集包括超过40万份儿童电子纪录。此外，还收集了来自2500名家长和30000名小学生的关于健康和福祉的调查答复，以丰富个人答复并将其与数据脊柱联系起来。电子队列包括自2011年以来在威尔士出生的所有儿童，并对其进行随访，直到他们11岁完成小学教育。儿童群体占51%：49%为女性：男性，7.8%来自少数民族背景。在年龄分布方面，26.8%的儿童在5岁以下，63.2%的儿童在5-11岁之间。出生在威尔士将扩大30 000新生儿每年在威尔士（在NCCHD），同时包括后续数据的儿童和父母已经在数据库中。补充数据集补充了现有的联系，包括初级保健、医院数据、教育程度和社会保健。未来的研究包括探索COVID-19对儿童健康和发展的长期影响，以及研究父母工作环境对儿童健康和发展的影响。
Using Wales’s national dataset for maternity and births as a core dataset, we have linked related datasets to create a more complete and comprehensive entire country birth cohort. Data of anonymised identified persons are linked on the individual level to data from health, social care and education data within the Secure Anonymised Information Linkage (SAIL) Databank. Each individual is assigned an encrypted Anonymised Linking Field; this field is used to link anonymised individuals across datasets. We present the descriptive data available in the core dataset, and the future expansion plans for the database beyond its initial development stage. Descriptive information from 2011 to 2023 has been gathered from the National Community Child Health Database (NCCHD) in SAIL. This comprehensive dataset comprises over 400 000 child electronic records. Additionally, survey responses about health and well-being from a cross-section of the population including 2500 parents and 30 000 primary school children have been collected for enriched personal responses and linkage to the data spine. The electronic cohort comprises all children born in Wales since 2011, with follow-up conducted until they finish primary school at age 11. The child cohort is 51%: 49% female: male, and 7.8% are from ethnic minority backgrounds. When considering age distribution, 26.8% of children are under the age of 5, while 63.2% fall within the age range of 5–11. Born in Wales will expand by 30 000 new births annually in Wales (in NCCHD), while including follow-up data of children and parents already in the database. Supplementary datasets complement the existing linkage, including primary care, hospital data, educational attainment and social care. Future research includes exploring the long-term implications of COVID-19 on child health and development, and examining the impact of parental work environment on child health and development.
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影响因子：
2.9
作者：
James M;Marchant E;Defeyter MA;Woodside J;Brophy S
通讯作者：
Brophy S
影响因子：
3.7
作者：
Todberg T;Koch A;Andersson M;Olsen SF;Lous J;Homøe P
通讯作者：
Homøe P
影响因子：
4.4
作者：
Gray L
通讯作者：
Gray L
影响因子：
7.7
作者：
Wright, John;Small, Neil;West, Jane
通讯作者：
West, Jane
影响因子：
3.7
作者：
Martin, Peter;Cortina-Borja, Mario;Macfarlane, Alison
通讯作者：
Macfarlane, Alison