Improving the experience of dementia and enhancing active life--living well with dementia: study protocol for the IDEAL study.
Improving the experience of dementia and enhancing active life--living well with dementia: study protocol for the IDEAL study.
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DOI：
10.1186/s12955-014-0164-6
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发表时间：
2014-11-30
影响因子：
3.6
通讯作者：
Victor CR
中科院分区：
文献类型：
--
作者：
Clare L;Nelis SM;Quinn C;Martyr A;Henderson C;Hindle JV;Jones IR;Jones RW;Knapp M;Kopelman MD;Morris RG;Pickett JA;Rusted JM;Savitch NM;Thom JM;Victor CR
让痴呆症患者和照顾者能够很好地生活在这种情况下，是英国的一个关键政策目标。这个项目的目的是找出在患有痴呆症或照顾痴呆症患者的背景下，是什么帮助人们生活得好或让人们难以生活得好，并从痴呆症患者和照顾者的角度理解什么是“生活得好”。在两年的时间里，英国各地的1500名早期痴呆症患者将被招募到这项研究中，并尽可能地与护理人员一起参与研究。所有参与者最初将在家中接受访问，12个月和24个月后将再次接受访问。这将提供有关社会资本、资产和资源如何影响幸福感、生活满意度和生活质量的信息，痴呆症带来的挑战，以及人们适应和应对这些挑战的方式。一小部分人将接受更深入的采访。这些发现将导致对个人、社区、卫生和社会护理从业者、护理提供者和政策制定者可以做些什么来提高痴呆症患者生活得更好的可能性提出建议。
Enabling people with dementia and carers to ‘live well’ with the condition is a key United Kingdom policy objective. The aim of this project is to identify what helps people to live well or makes it difficult to live well in the context of having dementia or caring for a person with dementia, and to understand what ‘living well’ means from the perspective of people with dementia and carers. Over a two-year period, 1500 people with early-stage dementia throughout Great Britain will be recruited to the study, together with a carer wherever possible. All the participants will be visited at home initially and again 12 months and 24 months later. This will provide information about the way in which well-being, life satisfaction and quality of life are affected by social capitals, assets and resources, the challenges posed by dementia, and the ways in which people adjust to and cope with these challenges. A smaller group will be interviewed in more depth. The findings will lead to recommendations about what can be done by individuals, communities, health and social care practitioners, care providers and policy-makers to improve the likelihood of living well with dementia.
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影响因子：
5.7
作者：
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通讯作者：
Downs, Murna
影响因子：
3.5
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7.2
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通讯作者：
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通讯作者：
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