Patient participation in Delphi surveys to develop core outcome sets: systematic review.
Patient participation in Delphi surveys to develop core outcome sets: systematic review.
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患者参与Delphi调查以开发核心结果集：系统评价。
DOI：
10.1136/bmjopen-2021-051066
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发表时间：
2021-09-02
期刊：
影响因子：
2.9
通讯作者：
Williamson PR
中科院分区：
文献类型：
--
作者：
Barrington H;Young B;Williamson PR
描述将患者作为参与者的核心结果集(COS)研究的设计和实施，探索研究特征如何影响他们的应答率。对2015至2019年间发表的COS研究进行系统综述，其中包括一名以上的患者、护理者或代表作为参与者(以下简称患者)在Delphi中对结果进行评分。将患者纳入Delphi过程的COS研究在设计和实施方面存在差异，包括不同的：评分和反馈系统、招募患者的方法、轮询之间的时间长度、提醒的使用、激励、患者和公众参与以及试点。对参与者特征的报告很少，缺乏将德尔福调查翻译成当地语言。此外，有迹象表明，通过治疗中心招募患者的研究比通过患者组织招募的研究有更高的第二轮应答率。COS Delphi调查在设计和进行COS Delphi调查以包括患者参与者和其他利益相关者的方式上具有惊人的可变性。未来的研究需要探索是什么促使患者参与COS研究，以及哪些因素影响COS开发人员招募策略。改进的报告将增加有关方法如何影响患者参与COS Delphi研究的知识。
To describe the design and conduct of core outcome set (COS) studies that have included patients as participants, exploring how study characteristics might impact their response rates. Systematic review of COS studies published between 2015 and 2019 that included more than one patient, carer or representative as participants (hereafter referred to as patients for brevity) in scoring outcomes in a Delphi. There were variations in the design and conduct of COS studies that included patients in the Delphi process, including differing: scoring and feedback systems, approaches to recruiting patients, length of time between rounds, use of reminders, incentives, patient and public involvement, and piloting. Minimal reporting of participant characteristics and a lack of translation of Delphi surveys into local languages were found. Additionally, there were indications that studies that recruited patients through treatment centres had higher round two response rates than studies recruiting through patient organisations. Variability was striking in how COS Delphi surveys were designed and conducted to include patient participants and other stakeholders. Future research is needed to explore what motivates patients to take part in COS studies and what factors influence COS developer recruitment strategies. Improved reporting would increase knowledge of how methods affect patient participation in COS Delphi studies.
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影响因子：
3.7
作者：
Gargon E;Gorst SL;Matvienko-Sikar K;Williamson PR
通讯作者：
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影响因子：
3.7
作者：
Gargon E;Gurung B;Medley N;Altman DG;Blazeby JM;Clarke M;Williamson PR
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作者：
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通讯作者：
Core Outcome Measures in Tinnitus (COMiT) initiative
影响因子：
15.8
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通讯作者：
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