Internet-Based Interventions Aimed at Supporting Family Caregivers of People With Dementia: Systematic Review.
Internet-Based Interventions Aimed at Supporting Family Caregivers of People With Dementia: Systematic Review.
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DOI：
10.2196/jmir.9548
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发表时间：
2018-06-12
影响因子：
7.4
通讯作者：
Davies N
中科院分区：
文献类型：
--
作者：
Hopwood J;Walker N;McDonagh L;Rait G;Walters K;Iliffe S;Ross J;Davies N
照顾痴呆症患者是最具挑战性的护理角色之一。一段时间以来，人们已经认识到需要为家庭照顾者提供支助，但往往仍然缺乏这种支助。随着人口老龄化，对健康和社会护理服务的需求不断增长，人们越来越多地通过互联网获取信息和支持。在这篇综述中，我们的目的是（1）确定现有的基于互联网的干预措施的关键组成部分，旨在支持痴呆症患者的家庭照顾者，（2）了解哪些组成部分最受照顾者的重视，（3）考虑基于互联网的干预措施的有效性的证据，旨在支持痴呆症患者的家庭照顾者。我们于2018年4月对在线数据库进行了系统检索。我们搜索了参考文献列表并跟踪了引文。纳入了所有研究设计。我们采用了以主题分析和列表为工具的叙述性综合方法。我们确定了2325项研究，其中包括40项。这些干预措施在组成部分的数量和类型、持续时间和剂量以及用于衡量有效性的结果方面各不相同。干预措施的重点是（1）与卫生或社会保健提供者的联系，（2）同伴互动，（3）提供信息，（4）决策支持，（5）心理支持。这些研究的总体质量很低，难以解释和概括成效调查结果。然而，大多数研究表明，干预措施可能有利于家庭照顾者的福祉，包括对抑郁，焦虑和负担的积极影响。在线提供的心理支持尤其有益，几项小型随机对照试验表明，照顾者的心理健康有所改善。在线提供信息在专门为个人量身定制并作为多成分干预措施的一部分时最为有益。在线小组提供的同伴支持受到大多数参与者的赞赏，并对压力产生了积极的影响。最后，与专业人员的在线联系受到照顾者的赞赏，他们重视容易获得个性化的实用建议和情感支持，从而减轻负担和压力。虽然结果好坏参半，但表明对照顾者使用基于互联网的干预措施作出了积极反应。需要进行更多高质量的研究，以确定旨在支持家庭照顾者的互联网干预措施的有效性，特别关注满足照顾者在痴呆症不同阶段的需求。
Caring for someone with dementia is one of the most challenging caring roles. The need for support for family caregivers has been recognized for some time but is often still lacking. With an aging population, demand on health and social care services is growing, and the population is increasingly looking to the internet for information and support. In this review, we aimed to (1) identify the key components of existing internet-based interventions designed to support family caregivers of people with dementia, (2) develop an understanding of which components are most valued by caregivers, and (3) consider the evidence of effectiveness of internet-based interventions designed to support family caregivers of people with dementia. We conducted a systematic search of online databases in April 2018. We searched reference lists and tracked citations. All study designs were included. We adopted a narrative synthesis approach with thematic analysis and tabulation as tools. We identified 2325 studies, of which we included 40. The interventions varied in the number and types of components, duration and dose, and outcomes used to measure effectiveness. The interventions focused on (1) contact with health or social care providers, (2) peer interaction, (3) provision of information, (4) decision support, and (5) psychological support. The overall quality of the studies was low, making interpretation and generalizability of the effectiveness findings difficult. However, most studies suggested that interventions may be beneficial to family caregiver well-being, including positive impacts on depression, anxiety, and burden. Particular benefit came from psychological support provided online, where several small randomized controlled trials suggested improvements in caregiver mental health. Provision of information online was most beneficial when tailored specifically for the individual and used as part of a multicomponent intervention. Peer support provided in online groups was appreciated by most participants and showed positive effects on stress. Finally, online contact with a professional was appreciated by caregivers, who valued easy access to personalized practical advice and emotional support, leading to a reduction in burden and strain. Although mixed, the results indicate a positive response for the use of internet-based interventions by caregivers. More high-quality studies are required to identify the effectiveness of internet interventions aimed at supporting family caregivers, with particular focus on meeting the needs of caregivers during the different stages of dementia.
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影响因子：
1.7
作者：
Boots LM;de Vugt ME;Withagen HE;Kempen GI;Verhey FR
通讯作者：
Verhey FR
影响因子：
2.8
作者：
Bass, DM;McClendon, MJ;McCarthy, C
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影响因子：
3.4
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通讯作者：
Cuijpers, P
影响因子：
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作者：
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影响因子：
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作者：
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通讯作者：
Rutledge, Carolyn