Evaluation of pediatric rheumatology telehealth satisfaction during the COVID-19 pandemic.
Evaluation of pediatric rheumatology telehealth satisfaction during the COVID-19 pandemic.
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DOI：
10.1186/s12969-021-00649-4
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发表时间：
2021-12-09
期刊：
影响因子：
--
通讯作者：
Burnham JM
中科院分区：
文献类型：
--
作者：
Waqar-Cowles LN;Chuo J;Weiss PF;Gmuca S;LaNoue M;Burnham JM
在2019年冠状病毒病大流行期间，儿科风湿病门诊医疗迅速转变为主要的远程医疗模式。然而，儿科患者和护理人员对广泛部署的远程医疗项目的满意度在很大程度上仍然未知。本研究旨在评估患者/护理人员对远程医疗的满意度，并确定与儿童风湿病患者满意度相关的因素。在2020年4月至6月期间与风湿病提供者进行首次远程医疗视频访问的患者符合条件。所有患者/护理人员都收到了一份访问后调查，以评估修改版的远程医疗可用性问卷（TUQ）以及人口统计学和临床特征。TUQ总分和分量表（有用性、易用性、有效性、满意度）得分被计算出来，并根据5分李克特量表上“同意”或“非常同意”的回答被分类为“积极”。结果采用标准描述性统计和Wilcoxon符号秩检验进行分析。使用单变量线性回归评估人口统计学和临床特征与TUQ评分之间的关系。597名患者/护理人员符合纳入标准，调查回复率为42% （n = 248）。青少年特发性关节炎是最常见的诊断（33.5%）。大多数患者的诊断时间超过6个月（72.6%），并开具了慢性药物（59.7%）。TUQ总分中位数为4分（IQR: 4 - 5）， 81%的题目有积极反应。在子量表中，有用性得分最低（中位数：4，p < 0.001）。远程医疗节省旅行时间是项目得分中位数最高的（中位数= 5,IQR: 4-5）。在子量表中，得分明显较低的项目包括便利性、满足需求、看风湿病医生和亲自就诊，以及接受风湿病服务的可接受方式（均p < 0.001）。没有显著的人口学或临床特征与TUQ评分相关。我们的研究结果表明，远程医疗是一种很有前途的儿童风湿病医疗服务模式，但也确定了改进的机会。需要创新和研究来设计一个远程医疗系统，提供高质量和安全的护理，改善医疗保健结果。由于远程医疗是一种迅速兴起的儿科风湿病护理形式，因此改善患者、护理人员和提供者的参与和培训可能有助于改善患者未来的体验。在线版本包含补充材料，可在10.1186/s12969-021-00649-4获得。
During the Coronavirus disease 2019 pandemic, ambulatory pediatric rheumatology healthcare rapidly transformed to a mainly telehealth model. However, pediatric patient and caregiver satisfaction with broadly deployed telehealth programs remains largely unknown. This study aimed to evaluate patient/caregiver satisfaction with telehealth and identify the factors associated with satisfaction in a generalizable sample of pediatric rheumatology patients. Patients with an initial telehealth video visit with a rheumatology provider between April and June 2020 were eligible. All patients/caregivers were sent a post-visit survey to assess a modified version of the Telehealth Usability Questionnaire (TUQ) and demographic and clinical characteristics. TUQ total and sub-scale (usefulness, ease of use, effectiveness, satisfaction) scores were calculated and classified as “positive” based on responses of “agree” or “strongly agree” on a 5-point Likert scale. Results were analyzed using standard descriptive statistics and Wilcoxon signed rank testing. The association between demographic and clinical characteristics with TUQ scores was assessed using univariate linear regression. 597 patients/caregivers met inclusion criteria, and the survey response rate was 42% (n = 248). Juvenile idiopathic arthritis was the most common diagnosis (33.5%). The majority of patients were diagnosed greater than 6 months previously (72.6%) and were prescribed chronic medications (59.7%). The median total TUQ score was 4 (IQR: 4–5) with positive responses in 81% of items. Of the subscales, usefulness scores were lowest (median: 4, p < 0.001). Telehealth saves time traveling was the highest median item score (median = 5, IQR: 4–5). Within subscales, items that scored significantly lower included convenience, providing for needs, seeing rheumatologist as well as in person, and being an acceptable way to receive rheumatology services (all p < 0.001). There were no significant demographic or clinical features associated with TUQ scores. Our results suggest telehealth is a promising mode of healthcare delivery for pediatric rheumatic diseases but also identifies opportunities for improvement. Innovation and research are needed to design a telehealth system that delivers high quality and safe care that improves healthcare outcomes. Since telehealth is a rapidly emerging form of pediatric rheumatology care, improved engagement and training of patients, caregivers, and providers may help improve the patient experience in the future. The online version contains supplementary material available at 10.1186/s12969-021-00649-4.
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DOI：
10.1186/s12969-016-0116-2
发表时间：
2016-09-20
期刊：
Pediatric rheumatology online journal
影响因子：
--
作者：
Kessler EA;Sherman AK;Becker ML
通讯作者：
Becker ML
DOI：
10.1197/jamia.m2146
发表时间：
2006-11-01
影响因子：
6.4
作者：
Bakken, Suzanne;Grullon-Figueboa, Lorena;Starren, Justin
通讯作者：
Starren, Justin
DOI：
10.1186/s12969-017-0184-y
发表时间：
2017-07-11
期刊：
Pediatric rheumatology online journal
影响因子：
--
作者：
Bullock DR;Vehe RK;Zhang L;Correll CK
通讯作者：
Correll CK
DOI：
10.1016/j.inat.2016.10.002
发表时间：
2017-03-01
影响因子：
0.4
作者：
Barsoom, Randa R.;Maugans, Todd A.;Rosen, Paul
通讯作者：
Rosen, Paul
影响因子：
3.3
作者：
Parmanto, Bambang;Lewis, Allen Nelson, Jr.;Bertolet, Marnie H.
通讯作者：
Bertolet, Marnie H.