A systematic review of barriers to data sharing in public health.
A systematic review of barriers to data sharing in public health.
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DOI：
10.1186/1471-2458-14-1144
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发表时间：
2014-11-05
影响因子：
4.5
通讯作者：
Burke DS
中科院分区：
文献类型：
--
作者：
van Panhuis WG;Paul P;Emerson C;Grefenstette J;Wilder R;Herbst AJ;Heymann D;Burke DS
在当前信息时代，数据的使用对于地方、国家和全球层面的公共卫生决策至关重要。尽管全球致力于使用和共享公共卫生数据，但这在现实中可能具有挑战性。目前还没有为公共卫生数据共享创建系统框架或全球操作指南。不同级别的障碍限制了数据共享，但仅进行了轶事讨论或在具体案例研究的背景下进行。关于这些障碍的范围和种类的系统证据不完整，限制了最大限度地发挥公共卫生数据在科学和政策方面的价值和利用的机会。我们对公共卫生数据共享的潜在障碍进行了系统的文献综述。描述共享常规收集的公共卫生数据的障碍的文件有资格纳入并由专家团队独立审查。我们将已识别的障碍进行分类，以便就解决方案进行集中的国际对话。确定了二十个潜在障碍，并将其分为六类：技术、动机、经济、政治、法律和道德。前三类深深植根于卫生信息系统的众所周知的挑战，但尚未找到结构性解决方案；后三个问题的解决方案在于国际对话，旨在就数据共享的政策和工具达成共识。从技术问题到无形问题等多种相互作用的障碍的同时影响，使公共卫生数据共享的进展变得非常复杂。公共卫生数据共享障碍的系统框架对于加速利用有价值的信息造福全球至关重要。本文的在线版本 (doi:10.1186/1471-2458-14-1144) 包含补充材料，可供授权用户使用。
In the current information age, the use of data has become essential for decision making in public health at the local, national, and global level. Despite a global commitment to the use and sharing of public health data, this can be challenging in reality. No systematic framework or global operational guidelines have been created for data sharing in public health. Barriers at different levels have limited data sharing but have only been anecdotally discussed or in the context of specific case studies. Incomplete systematic evidence on the scope and variety of these barriers has limited opportunities to maximize the value and use of public health data for science and policy. We conducted a systematic literature review of potential barriers to public health data sharing. Documents that described barriers to sharing of routinely collected public health data were eligible for inclusion and reviewed independently by a team of experts. We grouped identified barriers in a taxonomy for a focused international dialogue on solutions. Twenty potential barriers were identified and classified in six categories: technical, motivational, economic, political, legal and ethical. The first three categories are deeply rooted in well-known challenges of health information systems for which structural solutions have yet to be found; the last three have solutions that lie in an international dialogue aimed at generating consensus on policies and instruments for data sharing. The simultaneous effect of multiple interacting barriers ranging from technical to intangible issues has greatly complicated advances in public health data sharing. A systematic framework of barriers to data sharing in public health will be essential to accelerate the use of valuable information for the global good. The online version of this article (doi:10.1186/1471-2458-14-1144) contains supplementary material, which is available to authorized users.
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影响因子：
168.9
作者：
AbouZahr, Carla;Cleland, John;Szreter, Simon
通讯作者：
Szreter, Simon
影响因子：
168.9
作者：
Boerma, J. Ties;Stansfield, Sally K.
通讯作者：
Stansfield, Sally K.
影响因子：
168.9
作者：
AbouZahr, Carla;Adjei, Sam;Kanchanachitra, Churnrurtai
通讯作者：
Kanchanachitra, Churnrurtai
影响因子：
15.8
作者：
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通讯作者：
Byass P
影响因子：
105.7
作者：
Boussard, E;Flahault, A;Valleron, AJ
通讯作者：
Valleron, AJ