Perspectives of policy and political decision makers on access to formal dementia care: expert interviews in eight European countries.

Perspectives of policy and political decision makers on access to formal dementia care: expert interviews in eight European countries.
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DOI:
10.1186/s12913-017-2456-0
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发表时间:
2017-08-03
影响因子:
2.8
通讯作者:
ActifCare Consortium
ActifCare Consortium
中科院分区:
医学3区
文献类型:
--
作者:
Broda A;Bieber A;Meyer G;Hopper L;Joyce R;Irving K;Zanetti O;Portolani E;Kerpershoek L;Verhey F;Vugt M;Wolfs C;Eriksen S;Røsvik J;Marques MJ;Gonçalves-Pereira M;Sjölund BM;Woods B;Jelley H;Orrell M;Stephan A;ActifCare Consortium

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作为ActifCare(及时获得正式护理)项目的一部分,我们在八个欧洲国家与政策和政治决策者或相关机构的代表进行了专家访谈,以确定他们对痴呆症患者及其护理人员获得正式护理的看法。每个ActifCare国家(德国、爱尔兰、意大利、荷兰、挪威、葡萄牙、瑞典、英国)对4-7名专家(共计N = 38)进行了半结构化访谈。访谈指南涉及“护理的复杂性和连续性”、“正规服务”和“公众意识”等主题。针对具体国家的访谈记录分析采用了归纳定性内容分析。跨国综合侧重于ActivCare国家主题的相似性。分析揭示了各国的10个共同主题和另外两个分主题。除其他外,专家们强调需要发挥协调作用,需要信息来解决护理的复杂性和连续性问题,要求提供以人为本、量身定制和多学科的正规服务,并提到教育、大众媒体和宣传运动是提高公众认识的手段。政策和政治决策者似乎非常熟悉目前研究人员和从业人员之间的讨论,以改善获得痴呆症护理的可能方法。专家们描述了影响痴呆症护理的务实,现实的策略。建议的创新涉及如何改善痴呆症护理,而不是改变所提供服务的性质。在这些专家访谈中获得的知识可能对国家决策者在考虑重塑痴呆症护理组织时有用,因此可能有助于制定最佳实践策略和建议。本文的在线版本(doi:10.1186/s12913-017-2456-0)包含补充材料,可供授权用户使用。
As part of the ActifCare (ACcess to Timely Formal Care) project, we conducted expert interviews in eight European countries with policy and political decision makers, or representatives of relevant institutions, to determine their perspectives on access to formal care for people with dementia and their carers. Each ActifCare country (Germany, Ireland, Italy, The Netherlands, Norway, Portugal, Sweden, United Kingdom) conducted semi-structured interviews with 4–7 experts (total N = 38). The interview guide addressed the topics “Complexity and Continuity of Care”, “Formal Services”, and “Public Awareness”. Country-specific analysis of interview transcripts used an inductive qualitative content analysis. Cross-national synthesis focused on similarities in themes across the ActifCare countries. The analysis revealed ten common themes and two additional sub-themes across countries. Among others, the experts highlighted the need for a coordinating role and the necessity of information to address issues of complexity and continuity of care, demanded person-centred, tailored, and multidisciplinary formal services, and referred to education, mass media and campaigns as means to raise public awareness. Policy and political decision makers appear well acquainted with current discussions among both researchers and practitioners of possible approaches to improve access to dementia care. Experts described pragmatic, realistic strategies to influence dementia care. Suggested innovations concerned how to achieve improved dementia care, rather than transforming the nature of the services provided. Knowledge gained in these expert interviews may be useful to national decision makers when they consider reshaping the organisation of dementia care, and may thus help to develop best-practice strategies and recommendations. The online version of this article (doi:10.1186/s12913-017-2456-0) contains supplementary material, which is available to authorized users.
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