Patients' experience of undergoing maintenance hemodialysis. An interview study from Ethiopia.
Patients' experience of undergoing maintenance hemodialysis. An interview study from Ethiopia.
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DOI：
10.1371/journal.pone.0284422
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发表时间：
2023
期刊：
影响因子：
3.7
通讯作者：
Wettergren, Lena
中科院分区：
文献类型：
--
作者：
Gebrie, Mignote Hailu;Asfaw, Hussen Mekonnen;Bilchut, Workagegnehu Hailu;Lindgren, Helena;Wettergren, Lena
肾衰竭患者需要以透析或肾移植的形式进行肾脏替代治疗才能生存。他们生活的许多方面，无论是在透析室内外，都受到这种疾病管理的影响。重要的是要了解接受血液透析的人的经验，以改善为他们提供的护理。因此，本研究旨在探讨埃塞俄比亚维持性血液透析患者的经验。在埃塞俄比亚的两个医疗机构进行了定性描述性研究。对15名在埃塞俄比亚接受血液透析的参与者（19-63岁的男性和女性）进行了个人访谈，采用自反性主题分析进行了分析。分析得出五个主题：感恩，面对受限的生活，支持的环境，梦想移植，过着麻烦的生活。这些次主题包括信任治疗、信仰上帝、体液和饮食限制、过于疲劳而无法社交、被污名化、家庭和社会支持、支持性医疗保健、缺乏捐赠者和赞助商、COVID-19作为障碍、财务限制、无法获得护理和运输以及接入线植入。尽管依赖于机器，不得不应对食物和液体限制以及经济挑战，但参与者仍然充满希望并梦想着移植。从研究的参与者中发现，肾衰竭患者接受血液透析的经历通常是相当负面的叙述。根据研究结果，我们建议发展多学科团队，以更好地满足血液透析患者的身体、情感和社会需求。在护理接受血液透析的患者时，这样的团队还应该让患者的家庭成员参与。
People with kidney failure require renal replacement therapy in the form of dialysis or a kidney transplant for survival. Many facets of their life, both within and outside the dialysis unit, are impacted by the management of this disease. It is important to comprehend the experiences of people undergoing hemodialysis in order to improve the care provided to them. Therefore, this study aimed to explore the experiences of patients undergoing maintenance hemodialysis in Ethiopia. A qualitative descriptive study was conducted at two healthcare facilities in Ethiopia. Individual interviews with 15 participants (men and women aged 19–63), undergoing hemodialysis in Ethiopia, were analyzed using reflexive thematic analysis. The analysis resulted in five themes: Feeling grateful, Facing a restricted life, a Supportive environment, Dreaming of a transplant, and Leading a hassled life. The subthemes include Trust in treatment, Faith in God, Challenging fluid and dietary restrictions, Being too fatigued to socialize, Being stigmatized, Family and social support, Supportive healthcare, Lacking a donor and sponsor, COVID-19 as a barrier, Financial constraints, Inaccessibility to care and transport and Access line implantation. Despite being dependent on a machine and having to deal with food and fluid restrictions as well as financial challenges, participants were hopeful and dreamed of a transplant. From the study’s participants, it was discovered that the experiences of people with kidney failure undergoing hemodialysis were generally, considerably negative narratives. Based on the results we recommend development of multidisciplinary teams to better meet patients’ physical, emotional, and social needs while undergoing hemodialysis. Such a team should also involve the patient’s family members when caring for patients on hemodialysis.
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作者：
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发表时间：
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期刊：
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影响因子：
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通讯作者：
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DOI：
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发表时间：
2021-01
影响因子：
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作者：
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通讯作者：
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