Caring for Children with an Autism Spectrum Disorder: Factors Associating with Health- and Care-Related Quality of Life of the Caregivers.
Caring for Children with an Autism Spectrum Disorder: Factors Associating with Health- and Care-Related Quality of Life of the Caregivers.
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DOI：
10.1007/s10803-021-05336-7
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发表时间：
2022-11
影响因子：
3.9
通讯作者：
Hakkaart-van Roijen, Leona
中科院分区：
文献类型：
--
作者：
ten Hoopen, Leontine W.;de Nijs, Pieter F. A.;Duvekot, Jorieke;Greaves-Lord, Kirstin;Hillegers, Manon H. J.;Brouwer, Werner B. F.;Hakkaart-van Roijen, Leona
本研究调查了81名临床转诊的自闭症谱系障碍（ASD）儿童的照顾者（主要是父母）的儿童、照顾者和养育测量与生活质量（QoL）的关系。我们使用EuroQol五维（EQ-5D）问卷和护理相关生活质量问卷（CarerQol）分别评估健康相关生活质量和护理相关生活质量。健康相关的生活质量与照顾者的内化问题和适应性应对，解释38%的方差。养育压力和适应性应对与护理相关的生活质量，解释了60%的方差。儿童变量与照顾者的健康和护理相关的生活质量，如果照顾者和照顾变量被考虑在内。研究结果表明，照顾者的心理健康，应对和养育压力在照顾自闭症儿童的重要性。在线版本包含补充材料，可通过10.1007/s10803-021-05336-7获得。
This study investigated the association of child, caregiver, and caregiving measurements with the quality of life (QoL) in 81 caregivers (mostly parents) of clinically referred children with autism spectrum disorder (ASD). We used the EuroQol five-dimensional (EQ-5D) questionnaire and the care-related QoL questionnaire (CarerQol) to respectively assess health-related QoL and care-related QoL. Health-related QoL was associated with the caregiver’s internalizing problems and adaptive coping, explaining 38% of the variance. Parenting stress and adaptive coping were associated with the care-related QoL and explained 60% of the variance. Child variables were not associated with the caregiver’s health- and care-related QoL if caregiver and caregiving variables were taken into account. Findings indicate the importance of the caregiver’s mental health, coping, and parenting stress in caring for children with ASD. The online version contains supplementary material available at 10.1007/s10803-021-05336-7.
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影响因子：
3.9
作者：
Gotham, Katherine;Pickles, Andrew;Lord, Catherine
通讯作者：
Lord, Catherine
影响因子：
3.3
作者：
Brooks, R
通讯作者：
Brooks, R
影响因子：
3.7
作者：
Fairthorne, Jenny;Hammond, Geoff;Leonard, Helen
通讯作者：
Leonard, Helen
影响因子：
2.2
作者：
EPSTEIN, NB;BALDWIN, LM;BISHOP, DS
通讯作者：
BISHOP, DS
影响因子：
3.6
作者：
Allik, Hiie;Larsson, Jan-Olov;Smedje, Hans
通讯作者：
Smedje, Hans