Sleep and asthma management in youth with poorly-controlled asthma and their caregivers: a qualitative approach.
Sleep and asthma management in youth with poorly-controlled asthma and their caregivers: a qualitative approach.
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哮喘及其护理人员的年轻人的睡眠和哮喘管理：一种定性的方法。
DOI：
10.1080/02770903.2021.1914650
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发表时间：
2022-06
期刊：
影响因子：
--
通讯作者：
中科院分区：
文献类型：
--
作者：
哮喘控制不佳的年轻人因咳嗽等夜间症状而导致睡眠障碍的风险增加。与哮喘相关的睡眠障碍可能会对患有哮喘的青少年及其家人产生下游后果。这项研究旨在描述(1)哮喘控制不良的青少年及其照顾者的睡眠障碍，以及(2)睡眠与哮喘管理的关系。患有哮喘控制不佳的青少年和他们的照顾者完成了家庭哮喘管理系统量表(FAMSS)，这是一种半结构化的访谈，评估了家庭背景下的青少年哮喘管理。采访被录音和转录。两位作者使用描述性内容分析在NVivo中对每个与睡眠相关的数据进行了编码。33名12-15岁的青少年(男性=13.2，SD=1.2)和他们的照顾者参与了这项研究。出现了四个主题：睡眠困难、睡眠环境、睡眠和自我管理，以及疲劳和自我管理。42%的青少年和照顾者报告夜间哮喘症状更严重(例如咳嗽)，导致夜间频繁醒来。大约27%的照顾者对他们孩子的夜间哮喘表示苦恼，并描述了他们的管理策略(例如，共眠、夜间症状监测)。青少年将嗜睡描述为哮喘自我管理任务(如服药依从性、对病情加重的反应)的障碍。访谈结果表明，在哮喘控制不佳的青少年中，睡眠和哮喘管理之间存在相当大的相互关系。哮喘提供者应该考虑与他们的青少年患者及其家人讨论睡眠困难问题。解决这些困难可能有助于青少年改善哮喘自我管理，并帮助照顾者更好地应对孩子的疾病。
Youth with poorly-controlled asthma are at increased risk for sleep disturbances caused by nocturnal symptoms like coughing. Asthma-related sleep disturbances can have downstream consequences for youth with asthma and their families. This study aims to describe (1) sleep disturbances in adolescents with poorly-controlled asthma and their caregivers and (2) the relationship between sleep and asthma management. Adolescents with poorly-controlled asthma and their caregivers completed the Family Asthma Management System Scale (FAMSS), a semi-structured interview that assesses youth asthma management within the family context. Interviews were audio-recorded and transcribed. Two authors coded each transcript for sleep-related data in NVivo using descriptive content analysis. Thirty-three adolescents ages 12–15 years old (M = 13.2, SD = 1.2) with poorly-controlled asthma and their caregivers participated in this study. Four main themes emerged: sleep difficulties, sleep environment, sleep and self-management, and fatigue and self-management. 42% of youth and caregivers reported worse nocturnal asthma symptoms (e.g. coughing) that caused frequent nighttime awakening. Approximately 27% of caregivers expressed distress over their child’s nocturnal asthma and described their management strategies (e.g. co-sleeping, nighttime symptom monitoring). Adolescents described sleepiness as a barrier to asthma self-management tasks (e.g. medication adherence, response to exacerbation). Interview responses demonstrated the considerable interrelationship of sleep and asthma management in adolescents with poorly-controlled asthma. Asthma providers should consider discussing sleep difficulties with their adolescent patients and their families. Addressing these difficulties may help adolescents improve their asthma self-management and help caregivers better cope with their child’s disease.
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影响因子：
5.9
作者：
Garbutt, Jane;Highstein, Gabriellle;Nelson, Kyle A.;Rivera-Spoljaric, Katherine;Strunk, Robert
通讯作者：
Strunk, Robert
影响因子：
1.9
作者：
Foster, Juliet M.;Sanderman, Robbert;van Sonderen, Eric
通讯作者：
van Sonderen, Eric
影响因子：
4.3
作者：
Foster, Juliet M.;Aucott, Lorna;van der Molen, Thys
通讯作者：
van der Molen, Thys
影响因子：
5.9
作者：
Daniel, Lauren C.;Boergers, Julie;Koinis-Mitchell, Daphne
通讯作者：
Koinis-Mitchell, Daphne
影响因子：
1.9
作者：
Blaakman, Susan W.;Cohen, Alyssa;Halterman, Jill S.
通讯作者：
Halterman, Jill S.