Genetic and Genomic Researchers' Perspectives on Biological Sample Sharing in Collaborative Research in Uganda: A Qualitative Study.
Genetic and Genomic Researchers' Perspectives on Biological Sample Sharing in Collaborative Research in Uganda: A Qualitative Study.
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DOI：
10.1177/15562646231171289
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发表时间：
2023-07
影响因子：
1.3
通讯作者：
Mwaka, Erisa Sabakaki
中科院分区：
文献类型：
--
作者：
Kaawa-Mafigiri, David;Sebatta, Deborah Ekusai;Munabi, Ian;Mwaka, Erisa Sabakaki
生物样本共享引发了许多伦理、法律和社会问题。这项研究探讨了遗传和基因组研究人员在国际合作研究中共享生物样本的观点。对15名研究人员进行了定性的深度访谈。与会者对生物库表示了积极的态度，并赞赏跨界共享生物样本的好处，但指出这种做法对当地的能力建设工作产生了不利影响。人们对管理样本共享的道德和监管框架的了解有限。研究人员强调了在生物库研究中尊重文化价值观的重要性。还提出了治理不善和利益分享不公平的问题。需要公平和公平的国际合作，所有研究人员都受到尊重并被视为平等的合作伙伴。
Numerous ethical, legal, and social issues arise with biological sample sharing. The study explored the perspectives of genetic and genomic researchers on the sharing of biological samples in international collaborative research. Qualitative in-depth interviews were conducted with 15 researchers. Participants expressed positive attitudes towards biobanking and appreciated the benefits of cross-border sharing of biological samples but noted that this practice had adversely affected local capacity building efforts. There was limited understanding of the ethical and regulatory frameworks governing sample sharing. Researchers emphasized the importance of respecting cultural values in biobanking research. Issues concerning poor governance and inequitable benefit sharing were also raised. There is a need for fair and equitable international collaborations where all researchers are treated with respect and as equal partners.
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影响因子：
24.3
作者：
Cambon-Thomsen, A.;Rial-Sebbag, E.;Knoppers, B. M.
通讯作者：
Knoppers, B. M.
DOI：
10.1038/s41431-021-00997-5
发表时间：
2022-03
期刊：
European journal of human genetics : EJHG
影响因子：
--
作者：
Broekstra R;Aris-Meijer JL;Maeckelberghe ELM;Stolk RP;Otten S
通讯作者：
Otten S
影响因子：
4
作者：
Al-Ebbini LMK;Khabour OF;Alzoubi KH;Alkaraki AK
通讯作者：
Alkaraki AK
影响因子：
2
作者：
Lemke, Amy A.;Halverson, Colin;Ross, Lainie Friedman
通讯作者：
Ross, Lainie Friedman
影响因子：
2.7
作者：
de Vries, Jantina;Munung, Syntia Nchangwi;Tindana, Paulina
通讯作者：
Tindana, Paulina