Use of a Qualitative Story Deck to Create Scenarios and Uncover Factors Associated with African American Participation in Genomics Research.

Use of a Qualitative Story Deck to Create Scenarios and Uncover Factors Associated with African American Participation in Genomics Research.
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DOI:
10.1177/1525822x20982089
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发表时间:
2021-05-01
期刊:
影响因子:
1.7
通讯作者:
Thomas SB
Thomas SB
中科院分区:
法学4区
文献类型:
--
作者:
Passmore SR;Jamison AM;Abdelwadoud M;Rogers TB;Wiggan M;Mullins DC;Thomas SB

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为了对非裔美国人参与基因组学研究的意愿有一个复杂的理解,我们开发了一种特别适合于在轻松的社会环境中研究决策的技术。“定性故事牌”(QSD)是一种游戏化、结构化的启发技术,允许自发地创建具有可变属性的场景。我们使用QSD来创建四个细节不同的研究场景(研究人员的种族/民族;研究目标;要求的生物标本;和机构关系)。参与者通过从这些类别中随机选择卡片来创建场景,并提供:(1)关于他们参与所代表的研究项目的意愿的判断;(2)他们在做出决定时的思考过程。QSD适用于涉及决策制定的主题,或者在提供具有替代属性的小片段将会有益的情况下。其他好处包括:迅速建立关系和参与,促进对鲜为人知或敏感问题的讨论。
To gain a complex understanding of willingness to participate in genomics research among African Americans, we developed a technique specifically suited to studying decision making in a relaxed social setting. The “Qualitative Story Deck,” (QSD) is a gamified, structured elicitation technique that allows for the spontaneous creation of scenarios with variable attributes. We used the QSD to create research scenarios that varied on four details (race/ethnicity of the researcher; research goal; biospecimen requested; and institutional affiliation). Participants created scenarios by randomly choosing cards from these categories and provided: (1) a judgement about their willingness to participate in the research project represented; and (2) their thought process in reaching a decision. The QSD has applicability to topics involving decision making or in cases where it would be beneficial to provide vignettes with alternate attributes. Additional benefits include: rapid establishment of rapport and engagement and the facilitation of discussion of little known or sensitive topics.
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