'Never once was I thinking the c-word': Parent perspectives on the facilitators and barriers to getting a childhood cancer diagnosis.
'Never once was I thinking the c-word': Parent perspectives on the facilitators and barriers to getting a childhood cancer diagnosis.
复制标题
DOI：
10.1111/jocn.16511
复制
发表时间：
2023-07
影响因子：
4.2
通讯作者：
Cottrell, Erika
中科院分区：
文献类型：
--
作者：
Christensen, Vivian;Parker, Kellee;Chan, Lai Hin Kimi;Saxton, Lauren;Cottrell, Erika
关键词：
从居住在美国的父母的角度描述从“有些不对劲”到儿童癌症诊断的促进因素和障碍。从第一次注意到症状到接受儿童癌症诊断，家庭通常会经历漫长的历程。了解美国医疗保健系统的社会和文化背景下的这一轨迹是制定策略的第一步，以缩短这一时间并减轻父母接受儿童癌症诊断时的一些社会心理影响。这项研究探讨了父母对孩子症状的解释和含义、他们关于寻求医疗护理的决定、与医疗保健提供者的互动以及事件的时间进程。归纳性定性探究。对代表 39 个独特儿童癌症病例的 55 名参与者进行了深入的半结构化访谈。使用归纳主题方法对数据进行分析。遵循 COREQ 指南。参与者描述了他们接受儿童癌症诊断过程中的多重障碍和促进因素。协调者包括注意到某些“不对劲”的地方，并且医生同意症状不正常；需要采取行动的急性症状；提倡诊断；并获得第二意见。障碍包括父母必须在日常生活中解释症状；即使症状持续存在，医生也不屑一顾；并且不觉得他们可以质疑医生的评估。家庭在接受儿童癌症诊断的过程中经历了多种促进因素和障碍。从父母的角度理解诊断路径可能会增加共同决策的机会。包含家庭观点的临床医生教育模块可以改善患者/家长与提供者的关系。参与者通过叙事故事描述了他们家人的癌症历程。参与者有机会审查和编辑他们的成绩单。
To describe the facilitators and barriers of getting from “something’s not right” to a childhood cancer diagnosis from the perspective of parents living in the United States of America. It is common for families to experience long trajectories from when they first notice symptoms to receiving a childhood cancer diagnosis. Understanding this trajectory within the social and cultural contexts of the United States healthcare system is the first step in developing strategies for reducing this timeframe and mitigating some of the psychosocial impact for parents in receiving a childhood cancer diagnosis. This study examines the interpretations and meanings parents attributed to their child’s symptoms, their decisions regarding seeking medical care, interactions with healthcare providers, and the time course of events. An inductive qualitative inquiry. In-depth, semi-structured interviews with 55 participants representing 39 unique cases of childhood cancer were conducted. Data were analyzed using an inductive thematic approach. COREQ guidelines were followed. Participants described multiple barriers and facilitators in their path to receiving a childhood cancer diagnosis. Facilitators included noticing something “wasn’t right” and physician in agreement that symptoms were unusual; acute symptoms requiring action; advocating for a diagnosis; and obtaining a second opinion. Barriers included parents having to interpret symptoms in the context of daily life; physician dismissiveness even when symptoms persisted; and not feeling they could question their physician’s assessment. Families experience multiple facilitators and barriers in their trajectory to receiving a childhood cancer diagnosis. Understanding the path to diagnosis from the parent perspective may increase opportunities for shared-decision making. Clinician educational modules that include family perspectives may improve patient/parent-provider relationships. Participants described their family’s cancer journey through narrative storytelling. Participants had the opportunity to review and make edits to their transcript.
登录
查看更多内容
在COVID-19大流行期间，英国儿童新诊断的癌症和1型糖尿病的表现的多中心服务评估。
影响因子：
2.6
作者：
Williams G;McLean R;Liu JF;Ritzmann TA;Dandapani M;Shanmugavadivel D;Sachdev P;Brougham M;Mitchell RT;Conway NT;Law J;Cunnington A;Ogunnaike G;Brougham K;Bayman E;Walker D
通讯作者：
Walker D
DOI：
10.1016/j.lanepe.2021.100188
发表时间：
2021-10
期刊：
The Lancet regional health. Europe
影响因子：
--
作者：
Erdmann F;Wellbrock M;Trübenbach C;Spix C;Schrappe M;Schüz J;Grabow D;Eichinger M
通讯作者：
Eichinger M
影响因子：
4.5
作者：
Faruqui, Neha;Joshi, Rohina;Bernays, Sarah
通讯作者：
Bernays, Sarah
影响因子：
8.8
作者：
Evans, N. T.;Wakefield, C. E.;Cohn, R. J.
通讯作者：
Cohn, R. J.
影响因子：
1.2
作者：
Cox, Jennifer A.;Karlson, Cynthia W.;Collier, Anderson B., III
通讯作者：
Collier, Anderson B., III