Reflections, impact and recommendations of a co-produced qualitative study with young people who have experience of mental health difficulties.

Reflections, impact and recommendations of a co-produced qualitative study with young people who have experience of mental health difficulties.
复制标题

DOI:
10.1111/hex.13088
复制
发表时间:
2021-05
期刊:
Health expectations : an international journal of public participation in health care and health policy
影响因子:
--
通讯作者:
Aylin P
Aylin P
中科院分区:
其他
文献类型:
--
作者:
Dewa LH;Lawrence-Jones A;Crandell C;Jaques J;Pickles K;Lavelle M;Pappa S;Aylin P

文献摘要

参考文献

被引文献

相似文献

在所有研究阶段,特别是在数据收集和分析方面,与有精神健康困难的年轻人分享权力的真正平等伙伴关系的证据有限。为了描述我们的定性研究--探索年轻人对使用技术检测精神健康恶化的可行性的看法--是如何利用联合制作原则共同制作的,同时反映了影响、挑战和建议。有精神健康困难经历的年轻人被任命,然后在所有研究阶段与研究人员合作。这项研究是根据联合制作的五项原则进行评估的。研究人员和年轻人的反思被收集了整个过程。7名年轻人组成了最初的青年咨询小组(YPAG);其中3人成为共同研究人员。在整个过程中,反思是关键。随着信任、信心和相互尊重随着时间的推移而增长,分享权力变得更加容易和明显,特别是在建立了安全空间之后。安全的空间对于公开讨论至关重要,我们的WhatsApp小组实现了持续的沟通、支持和共享决策。由此产生的共同制作的主题指南、编码框架、专题地图、论文和演示文稿产生了重大影响。据我们所知,这是第一个使用联合制作原则联合制作的定性心理健康研究。我们的严格评估可以作为一份信息性文件,帮助其他人产生有意义的、共同制作的未来研究。虽然联合制作需要时间,但它对研究人员、研究人员和合作研究人员都产生了重大影响。建议为合作研究人员的自发建议提供灵活的资金,并提供更多的面试培训时间。
There is limited evidence of genuine equal partnership where power is shared with young people with mental health difficulties throughout all research stages, particularly in data collection and analysis. To describe how our qualitative study, exploring young peoples’ perceptions on the feasibility of using technology to detect mental health deterioration, was co‐produced using principles of co‐production, whilst reflecting on impact, challenges and recommendations. Young people with experience of mental health difficulties were appointed and then worked with researchers throughout all research stages. The study was evaluated against the five principles of co‐production. Reflections from researchers and young people were collected throughout. Seven young people formed an initial Young People's Advisory Group (YPAG); three became co‐researchers. Reflection was key throughout the process. Sharing power became easier and more evident as trust, confidence and mutual respect grew over time, particularly after a safe space was established. The safe space was crucial for open discussions, and our WhatsApp group enabled continual communication, support and shared decision‐making. The resulting co‐produced topic guide, coding framework, thematic map, papers and presentations demonstrated significant impact. To our knowledge, this is the first qualitative mental health study to be co‐produced using the principles of co‐production. Our rigorous assessment can be utilized as an informative document to help others to produce meaningful co‐produced future research. Although co‐production takes time, it makes significant impact to the research, researchers and co‐researchers. Flexible funding for spontaneous suggestions from co‐researchers and more time for interview training is recommended.
DOI: 10.1136/bmj.j3453
发表时间: 2017-08-02
影响因子: 105.7
作者:
Staniszewska, S.;Brett, J.;Tysall, C.
通讯作者: Tysall, C.
DOI: 10.1186/s40900-016-0027-x
发表时间: 2016-01-01
影响因子: --
作者:
Baxter, Susan;Muir, Delia;Baird, Wendy
通讯作者: Baird, Wendy
DOI: 10.1371/journal.pbio.2001403
发表时间: 2017-05-01
期刊: PLOS BIOLOGY
影响因子: 9.8
作者:
Filipe, Angela;Renedo, Alicia;Marston, Cicely
通讯作者: Marston, Cicely
DOI: 10.1186/s12961-020-00558-0
发表时间: 2020-05-07
影响因子: 4
作者:
Williams, Oli;Sarre, Sophie;Palmer, Victoria J.
通讯作者: Palmer, Victoria J.
DOI: 10.1186/s12961-019-0432-3
发表时间: 2019-03-28
影响因子: 4
作者:
Oliver, Kathryn;Kothari, Anita;Mays, Nicholas
通讯作者: Mays, Nicholas