Reproductive decisions in people with sickle cell disease or sickle cell trait.
Reproductive decisions in people with sickle cell disease or sickle cell trait.
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DOI：
10.1177/0193945910371482
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发表时间：
2010-12
影响因子：
1.8
通讯作者：
Johnson B
中科院分区：
文献类型：
--
作者：
Gallo AM;Wilkie D;Suarez M;Labotka R;Molokie R;Thompson A;Hershberger P;Johnson B
在遗传性疾病如镰状细胞病(SCD)的背景下，了解SCD患者或携带者(镰状细胞特征[SCT])如何面对做出知情的生殖健康决定的挑战是至关重要的。这项分析的目的是检查患有镰状细胞病或镰状细胞特征的人的信念、态度和个人感受，这些人与做出知情的生殖健康决定有关。我们进行了三个焦点小组，共有15名患有SCD或SCT的人。我们确定了五个主题：镰状细胞疾病的健康相关问题；镰状细胞特征测试；伴侣选择；与伴侣分享镰状细胞状态；以及生殖选择。这些发现增强了对SCD和SCT患者生殖体验的了解，并为制定教育干预措施奠定了基础，教育干预的重点是做出关于成为父母的知情决定。
In the context of an inherited condition such as sickle cell disease (SCD), it is critical to understand how people with SCD or carriers (sickle cell trait [SCT]) face the challenges of making informed reproductive health decisions. The purpose of this analysis was to examine the beliefs, attitudes, and personal feelings of people with sickle cell disease or sickle cell trait related to making informed reproductive health decisions. We conducted three focus groups with a total of 15 people who had either SCD or SCT. We identified five themes: health related issues in sickle cell disease; testing for sickle cell trait; partner choice; sharing sickle cell status with partners; and reproductive options. These findings enhance understanding of the reproductive experiences in people with SCD and SCT and provide the groundwork for developing an educational intervention focused on making informed decisions about becoming a parent.
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影响因子：
2
作者：
Atkin, Karl;Ahmed, Shenaz;Green, Josephine M.
通讯作者：
Green, Josephine M.
影响因子：
3.3
作者：
Acharya, Kruti;Lang, Colleen Walsh;Ross, Lainie Friedman
通讯作者：
Ross, Lainie Friedman
影响因子：
3.5
作者：
Joyce, T;Kaestner, R;Korenman, S
通讯作者：
Korenman, S
影响因子：
8.8
作者：
Gustafson, Shanna L.;Gettig, Elizabeth A.;Krishnamurti, Lakshmanan
通讯作者：
Krishnamurti, Lakshmanan
DOI：
10.1089/jwh.1.1999.8.587
发表时间：
1999-06-01
期刊：
JOURNAL OF WOMENS HEALTH & GENDER-BASED MEDICINE
影响因子：
--
作者：
Ahluwalia, IB;Johnson, C;Melvin, C
通讯作者：
Melvin, C