Parent stress and coping trajectories in Hispanic and non-Hispanic families of children at risk of autism spectrum disorder.

Parent stress and coping trajectories in Hispanic and non-Hispanic families of children at risk of autism spectrum disorder.
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DOI:
10.1177/13623613211001611
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发表时间:
2021-08
期刊:
Autism : the international journal of research and practice
影响因子:
--
通讯作者:
Feinberg E
Feinberg E
中科院分区:
其他
文献类型:
--
作者:
Hickey EJ;Stransky M;Kuhn J;Rosenberg JE;Cabral HJ;Weitzman C;Broder-Fingert S;Feinberg E

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西班牙裔和非西班牙裔家庭之间存在显着的差异,在确定为自闭症谱系障碍(ASD)的风险儿童的诊断时间;然而,在整个诊断过程中,可能有助于或帮助解释这些差异的父母的经验知之甚少。目前的研究探讨了纵向轨迹的亲职压力,应对和感知家庭的影响,在ASD诊断过程中的种族和种族多样化的低收入,城市样本,允许西班牙裔和非西班牙裔家庭之间的比较。与非西班牙裔家庭相比,西班牙裔家庭报告了较低水平的父母压力(χ2=5.35[1],p=0.021),回避(χ2=9.66[1],p=0.002)和方法(χ2=8.61[1],p=0.003)应对,以及随时间推移的负面家庭影响(χ2=5.39[1],p=0.020)(主效应)。此外,随着时间的推移,西班牙裔和非西班牙裔父母在使用回避(χ2=10.80[3],p=0.013)和方法(χ2=11.57[3],p=0.009)应对以及负面家庭影响(χ2=9.81[3],p=0.020)方面的变化存在差异。这些差异开始揭示了西班牙裔父母的独特经历。由于西班牙裔家庭表现出的优势,利用这些优势并专注于教育,赋权和弹性的干预措施可能对西班牙裔家庭特别有益,也可能更好地为非西班牙裔家庭提供信息,以提高弹性。
Significant disparities exist between Hispanic and non-Hispanic families in time-to-diagnosis among children identified as at risk for Autism Spectrum Disorder (ASD); yet, little is known about parent experiences throughout the diagnostic process that may contribute to or help explain these disparities. The current study examined longitudinal trajectories of parenting stress, coping, and perceived family impact during the ASD diagnostic process among an ethnically and racially diverse low income, urban sample, allowing for comparisons between Hispanic and non-Hispanic families. Hispanic families reported lower levels of parenting stress (χ2=5.35[1], p=0.021), avoidant (χ2=9.66[1], p=0.002) and approach (χ2=8.61[1], p=0.003) coping, and negative family impact (χ2=5.39[1], p=0.020) across time (main effects) compared to non-Hispanic families. Further, there were differences in the change in use (time period x ethnicity interaction effects) of both avoidant (χ2=10.80[3], p=0.013) and approach (χ2=11.57[3], p=0.009) coping, as well as negative family impact (χ2=9.81[3], p=0.020), between Hispanic and non-Hispanic parents over time. These differences begin to shed light on the unique experiences of Hispanic parents. Because of the strengths that Hispanic families demonstrate, interventions that leverage those strengths and focus on education, empowerment, and resiliency might be particularly beneficial for Hispanic families and may also better inform work to increase resiliency in non-Hispanic families.
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