Reliability of parent report measures of behaviour in children with Down syndrome.
Reliability of parent report measures of behaviour in children with Down syndrome.
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DOI：
10.1111/jir.12533
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发表时间：
2018-09
期刊：
影响因子：
--
通讯作者：
Jacola L
中科院分区：
文献类型：
--
作者：
Esbensen AJ;Hoffman EK;Shaffer R;Chen E;Patel L;Jacola L
行为问题在唐氏综合症 (DS) 儿童中很常见。检测和评估适应不良行为的工具已针对典型发育（TD）儿童开发，并已针对智力和发育障碍（IDD）儿童的使用进行了评估。然而，这些措施尚未专门针对 DS 儿童进行评估。鉴于目前可用的评级量表并未涉及一些临床观察到的行为，这种心理测量评估非常重要。目前的研究评估了儿童行为检查表 (CBCL) 的心理测量特性，这是一种为 TD 儿童开发的常用筛查工具，常用于 IDD 儿童。该研究调查了学龄 DS 儿童 CBCL 的心理测量特性，包括使用异常行为检查表 (ABC) 和尼松格儿童行为评定表 (NCBRF) 对行为问题检测率、分布问题、内部一致性、评估者间可靠性以及收敛和判别效度进行评估。 88 名 6-18 岁 DS 儿童的看护者使用 CBCL、ABC 和 NCBRF 评估孩子的行为。教师填写了教师报告表（TRF）。据报道，大约 1/3 的 DS 儿童在 CBCL 总分上表现出临床关注的行为。 CBCL 子量表的内部一致性从差到极好，评估者间的可靠性通常可以接受。 CBCL 的子量表在评估收敛效度时表现最佳，具有可变的判别效度。规范数据转换控制了该样本中的年龄和性别差异。研究结果表明，在患有 DS 的儿童中，一些 CBCL 分量表通常以心理测量上合理且理论上与其他行为测量相关的适当方式进行。在解释特定分量表（焦虑/抑郁、躯体抱怨和思想问题）时需要谨慎。在评估 DS 儿童的行为问题时，CBCL 可以继续用作筛查措施，承认区分效度较差，并且 CBCL 筛查可能无法捕获 DS 中的关键行为问题。
Behavioural problems are common among children with Down syndrome (DS). Tools to detect and evaluate maladaptive behaviours have been developed for typically developing (TD) children and have been evaluated for use among children with intellectual and developmental disabilities (IDD). However, these measures have not been evaluated for use specifically in children with DS. This psychometric evaluation is important given that some clinically observed behaviours are not addressed in currently available rating scales. The current study evaluates the psychometric properties of the Child Behavior Checklist (CBCL), a commonly used screening tool developed for TD children and commonly used with children with IDD. The study investigated psychometric properties of the CBCL among school-age children with DS, including an assessment of the rate of detecting behaviour problems, concerns with distribution, internal consistency, inter-rater reliability, and convergent and discriminant validity with the Aberrant Behavior Checklist (ABC) and Nisonger Child Behavior Rating Form (NCBRF). Caregivers of 88 children with DS aged 6–18 years rated their child’s behaviour with the CBCL, ABC, and NCBRF. Teachers completed the Teacher Report Form (TRF). About 1/3 of children with DS were reported to exhibit behaviours of clinical concern on the total score of the CBCL. Internal consistency for CBCL subscales was poor to excellent, and inter-rater reliability was generally acceptable. The subscales of the CBCL performed best when evaluating convergent validity, with variable discriminant validity. Normative data conversions controlled for age and gender differences in this sample. The study findings suggest that, among children with DS, some CBCL subscales generally performed in a psychometrically sound and theoretically appropriate manner in relation to other measures of behaviour. Caution is warranted when interpreting specific subscales (Anxious/Depressed, Somatic Complaints, and Thought Problems). The CBCL can continue to be used as a screening measure when evaluating behavioural concerns among children with DS, acknowledging poor discriminant validity and that key behaviour concerns in DS may not be captured by the CBCL screen.
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