Development of a web-based executive functioning intervention for adolescents with epilepsy: The Epilepsy Journey.
Development of a web-based executive functioning intervention for adolescents with epilepsy: The Epilepsy Journey.
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DOI：
10.1016/j.yebeh.2017.04.009
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发表时间：
2017-07
期刊：
影响因子：
--
通讯作者：
Wade SL
中科院分区：
文献类型：
--
作者：
Modi AC;Schmidt M;Smith AW;Turnier L;Glaser N;Wade SL
青少年癫痫表现出显着的缺陷，在执行功能（EF），但很少有干预措施，以改善青少年EF。本研究的目的是开发一种个性化的干预措施，称为癫痫之旅，通过迭代，以患者为中心的过程，包括焦点小组和可用性测试，改善EF的各个方面。五名青少年和照顾者参加了重点小组。这个输入被用来开发十个学习模块的基础上的子量表的行为评定量表的执行功能和关键问题，可能会影响EF在青少年。六名青少年参与了可用性测试，一名可用性专家进行了启发式评估。还完成了人口统计信息、图表审查和EF测量。焦点小组参与者和他们的父母报告了记忆，注意力，组织，监控，启动，冲动，情绪控制，睡眠，学校意识和管理压力方面的困难。他们还确定了解决记忆和组织困难的成功策略。结果癫痫之旅模块的可用性测试显示了导航问题，并确定了促进可用性的功能，包括进度条和交互式模块。在每次可用性试验后，对程序进行了修改，从而形成了一个相对简短、互动和易于导航的程序。除了一个参与者外，所有参与者的感知效用都很高。参与者认为内容很有帮助，并表示他们会向其他人推荐癫痫之旅。焦点小组的反馈和可用性测试产生了一个可行的，可接受的，相关的和用户友好的网络为基础的干预青少年癫痫。癫痫之旅计划将在一项开放试点中进一步测试癫痫和相关EF缺陷的青少年。
Youth with epilepsy exhibit significant deficits in executive functioning (EF), yet there are few interventions to improve EF for adolescents. The aims of the current study were to develop an individually-tailored intervention, called Epilepsy Journey, to improve aspects of EF through an iterative, patient-centered process including focus groups and usability testing. Five adolescents and caregivers participated in focus groups. This input was used to develop ten learning modules based on subscales of the Behavioral Rating Inventory of Executive Functions and key issues that may impact EF in adolescents. Six adolescents participated in usability testing and a usability expert conducted a heuristic evaluation. Demographic information, chart reviews and measures of EF were also completed. Focus group participants and their parents reported difficulties with memory, attention, organization, monitoring, initiation, impulsivity, emotional control, sleep, awareness in schools and managing stress. They also identified successful strategies to address memory and organizational difficulties. Usability testing of the resultant Epilepsy Journey modules revealed problems with navigation and identified features that promoted usability, including progress bars and interactive modules. Program modifications were made after each usability trial resulting in a relatively brief, interactive and readily navigable program. Perceived utility was high with all but one participant. Participants rated the content as helpful and indicated they would recommend Epilepsy Journey to others. Feedback from the focus group and usability testing yielded a feasible, acceptable, relevant and user-friendly web-based intervention for adolescents with epilepsy. The Epilepsy Journey program will be further tested in an open pilot with adolescents with epilepsy and associated EF deficits.
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影响因子：
3
作者：
Hoie, B;Mykletun, A;Waaler, PE
通讯作者：
Waaler, PE
DOI：
10.1016/j.yebeh.2010.03.015
发表时间：
2010-07
期刊：
Epilepsy & behavior : E&B
影响因子：
--
作者：
Jones JE;Siddarth P;Gurbani S;Shields WD;Caplan R
通讯作者：
Caplan R
影响因子：
26.1
作者：
Kurowski, Brad G.;Wade, Shari L.;Taylor, H. Gerry
通讯作者：
Taylor, H. Gerry
影响因子：
5.6
作者：
Hermann BP;Jones JE;Sheth R;Koehn M;Becker T;Fine J;Allen CA;Seidenberg M
通讯作者：
Seidenberg M
影响因子：
5.6
作者：
Bailet, LL;Turk, WR
通讯作者：
Turk, WR