'It's being a part of a grand tradition, a grand counter-culture which involves communities': A qualitative investigation of autistic community connectedness.
'It's being a part of a grand tradition, a grand counter-culture which involves communities': A qualitative investigation of autistic community connectedness.
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DOI：
10.1177/13623613221080248
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发表时间：
2022-11
期刊：
影响因子：
5.2
通讯作者：
Frost, David M.
中科院分区：
文献类型：
--
作者：
Botha, Monique;Dibb, Bridget;Frost, David M.
关键词：
自闭症患者报告称，他们在社交方面更舒适，彼此之间的沟通也更容易。尽管自闭症被刻板地与缺乏社会动机联系在一起，但文献中对自闭症社区的描述很简短，但并没有得到很好的理解。自闭症社区的连通性可能在提高自闭症患者的幸福感方面发挥作用。这项定性研究包括面对面、通过基于视频的平台、基于文本的平台或通过电子邮件采访自闭症患者(N = 20)，以调查自闭症社区的联系。使用关键的扎根理论工具来收集和分析数据。自闭症社区连通性有三个要素：归属感、社会连通性和政治连通性。归属感指的是自闭症患者彼此之间感受到的相似性。社交联系指的是参与者与其他自闭症患者形成的特定友谊。政治联系指的是与自闭症社区的政治或社会平等目标的联系。参与者将自闭症社区联系的好处描述为增加自尊、方向感和社区意识，这是其他地方没有的。缺乏连通性涉及自闭症身份的矛盾心理和/或内在耻辱的感觉。自闭症社区联系的经历可能会对自闭症患者的福祉以及他们如何应对少数族裔的压力产生影响。有传闻称，人们有一种与其他自闭症患者联系在一起的感觉。友谊和联系可能对自闭症患者很重要，对他们的福祉也是有益的。我们的研究旨在通过采访20名自闭症患者，了解他们与其他自闭症患者联系的经历，以了解自闭症社区。参与者接受了面谈，通过视频，使用基于文本的软件打字或通过电子邮件进行采访。参与者详细介绍了自闭症社区联系的三个部分：归属感、与自闭症朋友的社会联系和政治联系。自闭症患者之间的友谊被认为对参与者非常重要，因为它给了他们信心，提供了陪伴，让他们感到快乐。一些参与者没有体验到与自闭症社区的联系。这些参与者还发现，自闭症对他们的身份不那么重要，对自闭症的积极感觉也更少。这项研究很重要，因为它提高了人们的意识，即社区联系被视为对这一群体的重要性。当自闭症患者在社会上面临耻辱或负面生活经历时，社区联系可能有助于保护他们的心理健康。
Autistic people report greater comfort socialising and easier communication with each other. Despite autism being stereotypically associated with lack of social motivation, an autistic community has been described briefly in the literature but is not well understood. Autistic community connectedness may play a role in promoting wellbeing for autistic people. This qualitative study involved interviewing autistic individuals (N = 20) in-person, via a video-based platform, a text-based platform or over email to investigate autistic community connectedness. Critical grounded theory tools were used to collect and analyse the data. There were three elements of autistic community connectedness: belongingness, social connectedness and political connectedness. Belongingness referred to the sense of similarity that autistic people experienced with each other. Social connectedness referred to specific friendship participants formed with other autistic people. Political connectedness referred to a connectedness to the political or social equality goals of the autistic community. Participants described the benefits of autistic community connectedness as being increased self-esteem, a sense of direction and a sense of community not experienced elsewhere. Lack of connectedness involved ambivalence with an autistic identity and/or feelings of internalised stigma. Experiences of autistic community connectedness may have implications for autistic people’s wellbeing, as well as how they cope with minority stress. A sense of being connected to other autistic people has been reported anecdotally. Friendships and connectedness may be important to autistic people and beneficial for their wellbeing. Our research aimed to understand the autistic community by interviewing 20 autistic people about their experiences of being connected to other autistic people. Participants were interviewed in person, over video, using a text-based software to type or over email. Participants detailed three parts of autistic community connectedness: a sense of belonging, social connection with autistic friends and political connectedness. The friendships autistic people had with one another were deemed to be very important to participants because it gave them confidence, provided companionship and made them happy. Some participants did not experience connectedness to the autistic community. These participants also found autism to be less important to their identity and had fewer positive feelings about being autistic. This research is important as it raises awareness that community connectedness is viewed as important to this group. It is possible that community connectedness may help protect the mental health of autistic people when they face stigma or negative life experiences in society.
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