Promoting patient-centred care in psoriatic arthritis: a multidisciplinary European perspective on improving the patient experience.
Promoting patient-centred care in psoriatic arthritis: a multidisciplinary European perspective on improving the patient experience.
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DOI：
10.1111/jdv.13306
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发表时间：
2016-04
期刊：
影响因子：
--
通讯作者：
Augustin M
中科院分区：
文献类型：
--
作者：
Betteridge N;Boehncke WH;Bundy C;Gossec L;Gratacós J;Augustin M
银屑病关节炎（PsA）患者可能无法得到最佳治疗。这种疾病的影响超出了皮肤和关节症状，损害了生活质量。这表明有必要采用以患者为中心的方法来管理PsA。召集了一个多学科专家工作组，目的是就目前的最佳做法和今后管理PsA的需要形成一个知情的观点。讨论的主题包括目前最佳实践的障碍，并呼吁采取行动改善PsA管理的三个领域：PsA的早期和准确诊断，疾病进展的管理和病情对患者影响的管理。工作小组同意，为充分利用现有的诊断工具、临床护理建议和有效的治疗方法，来自不同学科的医护专业人员显然有必要合作管理PsA。通过促进适当和快速的转诊，为患者提供有关PsA及其治疗的高质量信息，并在选择管理计划和制定治疗目标时积极参与患者，可以改善PsA的管理。本文介绍了工作组的观点，并建议采用多学科，以患者为中心的方法来管理PsA。
Patients with psoriatic arthritis (PsA) may not be optimally treated. The impact of the disease extends beyond skin and joint symptoms, impairing quality of life. This indicates that the adoption of a patient‐focused approach to PsA management is necessary. An expert multidisciplinary working group was convened, with the objective of developing an informed perspective on current best practice and needs for the future management of PsA. Topics of discussion included the barriers to current best practice and calls to action for the improvement of three areas in PsA management: early and accurate diagnosis of PsA, management of disease progression and management of the impact of the condition on the patient. The working group agreed that, to make best use of the available of diagnostic tools, clinical care recommendations and effective treatments, there is a clear need for healthcare professionals from different disciplines to collaborate in the management of PsA. By facilitating appropriate and rapid referral, providing high quality information about PsA and its treatment to patients, and actively involving patients when choosing management plans and setting treatment goals, management of PsA can be improved. The perspective of the working group is presented here, with recommendations for the adoption of a multidisciplinary, patient‐focused approach to the management of PsA.
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