Fit for purpose: Conception and psychometric evaluation of developmentally appropriate measures to assess functional recovery in first-episode psychosis across geo-cultural contexts.

Fit for purpose: Conception and psychometric evaluation of developmentally appropriate measures to assess functional recovery in first-episode psychosis across geo-cultural contexts.
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DOI:
10.1037/prj0000504
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发表时间:
2022-09
影响因子:
1.9
通讯作者:
Rangaswamy, Thara
Rangaswamy, Thara
中科院分区:
医学3区
文献类型:
--
作者:
Iyer, Srividya N.;Malla, Ashok;Taksal, Aarati;Pawliuk, Nicole;Mangala, Ramamurti;Mohan, Greeshma;Pope, Megan A.;Schmitz, Norbert;Loohuis, Heleen;Padmavati, Ramachandran;Joober, Ridha;Shah, Jai;Rangaswamy, Thara

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鉴于患有精神病的年轻人缺乏功能恢复措施,我们开发并进行了功能结果访谈(FOI)和青少年角色和愿望量表(RAY;急需的患者报告结果测量)的心理测量测试。这两项措施均通过与加拿大和印度早期精神病项目的专业人士、参与者和家庭的讨论,以英语、泰米尔语和法语制定。 FOI 评估职能角色的数量和任期,并允许对每个角色的绩效、支持需求和社交联系质量进行细致入微的评估。这些角色包括工作、学校、家庭责任、养育/照顾以及重返工作/学校的努力。 RAY 是一份关于当前角色和未来愿望的自我报告。 RAY 的重测信度、内部一致性、因子效度和并发效度;并对 FOI 的评估者间可靠性、内部一致性和同时有效性进行了评估。 RAY具有足够的内部一致性和时间稳定性,并且在因子分析中是一维的。 FOI 具有可接受的评估者间可靠性和内部一致性,正如跨职能角色的可比绩效评级所证明的那样。我们的新颖测量方法与既定的功能和阴性症状测量方法之间的显着关联表明同时有效。 FOI 和 RAY 旨在对年轻人友好、评估愿望并承认个人渴望并担任多种角色。因此,它们代表了评估首发精神病功能恢复方面的重大进步。这些措施在两种不同的环境中进行了测试,显示出在跨地缘文化背景下更广泛部署的前景。
Given the paucity of functional recovery measures for young people with psychosis, we developed and conducted psychometric testing of the Functional Outcomes Interview (FOI) and the Roles and Aspirations among Youth scale (RAY; a much-needed patient-reported outcome measure). Both measures were developed in English, Tamil, and French through discussions with professionals, participants and families at early psychosis programs in Canada and India. The FOI assesses the number and tenure of functional roles and allows the nuanced assessment of each role in terms of performance, need for support, and quality of social contacts. The roles include work, school, household responsibilities, parenting/caregiving and efforts to return to work/school. The RAY is a self-report of current roles and future aspirations. Test-retest reliability, internal consistency, factorial validity, and concurrent validity for the RAY; and inter-rater reliability, internal consistency and concurrent validity for the FOI were assessed. The RAY had adequate internal consistency and temporal stability and was unidimensional in factor analysis. The FOI had acceptable inter-rater reliability and internal consistency, as evinced by comparable performance ratings across functional roles. Significant associations between our novel measures and well-established measures of functioning and negative symptoms indicate concurrent validity. The FOI and RAY were designed to be youth-friendly, assess aspirations, and acknowledge individuals as desiring and holding multiple roles. They thus represent a significant advancement in assessing functional recovery in first-episode psychosis. Having been tested in two distinct settings, these measures show promise for wider deployment across geo-cultural contexts.
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