User-centered design and enhancement of an electronic personal health record to support survivors of pediatric cancers.
User-centered design and enhancement of an electronic personal health record to support survivors of pediatric cancers.
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DOI：
10.1007/s00520-019-05199-w
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发表时间：
2020-08
期刊：
影响因子：
--
通讯作者：
Mertens AC
中科院分区：
文献类型：
--
作者：
Marchak JG;Cherven B;Williamson Lewis R;Edwards P;Meacham LR;Palgon M;Escoffery C;Mertens AC
本文的目的是展示如何以用户为中心的设计理论和方法可以用来开发和迭代改进技术，以支持儿童癌症幸存者。对儿童癌症的年轻成年幸存者（N=3），父母（N=11）和医疗保健提供者（N=14）进行了焦点小组和结构化访谈，以了解他们作为潜在用户的需求以及他们将使用幸存者电子个人健康记录（PHR）的背景，Cancer SurvivorLink™（https：//cancersurvivorlink.org/）。进行可用性评价，以评估PHR的功能，使用大声思考方案与幸存者/父母（N=4）和焦点小组与供应商（N=12）。通过需求评估指导的PHR设计确定的主要主题，包括：1）有关儿科癌症幸存者终身医疗保健需求的教育（“学习”），2）医疗保健文件的安全电子存储，以指导长期后续护理（“存储”），以及3）允许与医疗保健提供者共享健康文件的通信功能（“共享”）。可用性评价确定了PHR设计的挑战，这为站点增强提供了信息，以提高PHR的有用性和易用性，包括注册向导和医疗保健提供者目录。以用户为中心的设计方法通知迭代增强不受约束的，患者控制的PHR，以解决可用性障碍，并满足儿童癌症幸存者及其提供者的自我识别需求。
The objective of this article is to demonstrate how user-centered design theory and methods can be employed to develop and iteratively improve technologies to support survivors of childhood cancer. Focus groups and structured interviews with young adult survivors of pediatric cancer (N=3), parents (N=11), and healthcare providers (N=14) were conducted to understand their needs as potential users and the contexts in which they would use an electronic personal health record (PHR) for survivors, Cancer SurvivorLink™ (https://cancersurvivorlink.org/). Usability evaluations were conducted to assess the functionality of the PHR using think aloud protocol with survivors/parents (N=4) and focus groups with providers (N=12). Major themes identified through the needs assessment guided design of the PHR, including: 1) education about the life-long healthcare needs of pediatric cancer survivors (“Learn”), 2) secure electronic storage for healthcare documents to direct long-term follow-up care (“Store”), and 3) communication functionality to allow sharing of health documents with healthcare providers (“Share”). Usability evaluations identified challenges with the PHR design, which informed site enhancements to improve PHR usefulness and ease of use including a registration wizard and healthcare provider directory. User-centered design methods informed iterative enhancements to an untethered, patient controlled PHR to address usability barriers and meet the self-identified needs of survivors of childhood cancer and their providers.
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影响因子：
3.5
作者：
Price M;Bellwood P;Kitson N;Davies I;Weber J;Lau F
通讯作者：
Lau F
个人健康记录：系统文献综述。
影响因子：
7.4
作者：
Roehrs A;da Costa CA;Righi RD;de Oliveira KS
通讯作者：
de Oliveira KS
DOI：
10.1007/s11764-011-0192-8
发表时间：
2011-12
期刊：
Journal of cancer survivorship : research and practice
影响因子：
--
作者：
Eshelman-Kent D;Kinahan KE;Hobbie W;Landier W;Teal S;Friedman D;Nagarajan R;Freyer DR
通讯作者：
Freyer DR
影响因子：
6.2
作者：
Nathan, Paul C.;Hayes-Lattin, Brandon;Hudson, Melissa M.
通讯作者：
Hudson, Melissa M.
影响因子：
7.3
作者：
DAVIS, FD
通讯作者：
DAVIS, FD