Addressing a critical need for caregiver support in neuro-oncology: development of a caregiver navigation intervention using eSNAP social resource visualization.
Addressing a critical need for caregiver support in neuro-oncology: development of a caregiver navigation intervention using eSNAP social resource visualization.
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解决神经肿瘤学中护理人员支持的批判性需求：使用ESNAP社会资源可视化开发护理人员导航干预措施。
DOI：
10.1007/s00520-022-06977-9
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发表时间：
2022-06
期刊：
影响因子：
--
通讯作者：
Byrne MM
中科院分区：
文献类型：
--
作者：
Reblin M;Wells KJ;Otto A;McCormick R;Rodriguez L;Walters K;Sutton SK;Zebrack B;Forsyth P;Byrne MM
非正式护理人员是肿瘤护理的关键，但往往有未满足的需求，导致不良的心理和身体健康结果。需要全面、积极的护理人员支持计划。我们描述了发展的支持干预的人与脑肿瘤的照顾者。该干预使用护理人员导航器来帮助参与者识别和利用使用基于网络的工具（eSNAP）捕获的现有社会支持资源，并将参与者与现有的正式服务联系起来。我们描述了手动干预的迭代开发过程，特别关注护理人员导航会话。该过程包括文献和已发表的患者导航程序审查、专家和利益相关者审查以及研究团队成员审查。从2020年2月至2020年12月招募的首批15名随机接受干预的参与者中获取定量和定性数据。4名参与者退出了研究，9名参与者完成了至少7个模块，8名参与者完成了所有8个模块。定量和定性数据主要从完成干预的人那里收集;数据表明，护理人员对干预感到满意，并发现它很有帮助。我们的干预措施是第一个基于理论的护理人员支持干预措施之一，包括神经肿瘤学中的护理人员导航。我们使用最佳实践指导方针进行设计，包括广泛的利益相关者反馈。COVID-19可能影响了招募和参与，但一些初步数据表明，那些能够参与干预的人发现它很有帮助。正在一项更大规模的试验中收集数据。如果有效，护理人员导航可以成为未来干预措施的模式，以确保护理人员的支持。
Informal caregivers are key to oncology care, but often have unmet needs, leading to poor psychological and physical health outcomes. Comprehensive, proactive caregiver support programs are needed. We describe the development of a support intervention for caregivers of persons with brain tumors. The intervention uses a caregiver navigator to help participants identify and capitalize on existing social support resources captured using a web-based tool (eSNAP) and connects participants to existing formal services. We describe the iterative development process of the manualized intervention with particular focus on the caregiver navigator sessions. The process included review of the literature and published patient navigation programs, expert and stakeholder review, and study team member review. Quantitative and qualitative data were captured from the first 15 participants randomized to receive the intervention, enrolled from February 2020 to December 2020. Four participants dropped from the study, 9 completed at least 7 modules, and 8 participants completed all 8. Quantitative and qualitative data were collected primarily from those who completed the intervention; data suggest caregivers were satisfied with the intervention and found it helpful. Our intervention is one of the first theory-based caregiver support interventions to include caregiver navigation in neuro-oncology. We use best-practice guidelines for design, including extensive stakeholder feedback. COVID-19 may have impacted recruitment and participation, but some preliminary data suggest that those able to engage with the intervention find it helpful. Data collection is ongoing in a larger trial. If effective, caregiver navigation could be a model for future interventions to ensure caregiver support.
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DOI：
10.1007/s00520-017-3650-7
发表时间：
2017-08
期刊：
Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer
影响因子：
--
作者：
Dionne-Odom JN;Demark-Wahnefried W;Taylor RA;Rocque GB;Azuero A;Acemgil A;Martin MY;Astin M;Ejem D;Kvale E;Heaton K;Pisu M;Partridge EE;Bakitas MA
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3.7
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Carver, Charles S.
DOI：
10.1016/j.ejon.2011.09.001
发表时间：
2012-09
期刊：
European journal of oncology nursing : the official journal of European Oncology Nursing Society
影响因子：
--
作者：
Fletcher BS;Miaskowski C;Given B;Schumacher K
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Schumacher K
影响因子：
3.6
作者：
Reblin M;Otto AK;Ketcher D;Vadaparampil ST;Ellington L;Heyman RE
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Heyman RE
DOI：
10.1007/s13187-016-1064-8
发表时间：
2017-12
期刊：
Journal of cancer education : the official journal of the American Association for Cancer Education
影响因子：
--
作者：
Ustjanauskas AE;Quinn GP;Pan TM;Rivera M;Vázquez-Otero C;Ung D;Roetzheim RG;Laronga C;Johnson K;Norton M;Carrizosa C;Muñoz D;Goldenstein M;Nuhaily S;Wells KJ
通讯作者：
Wells KJ