Adolescents with disabilities and caregivers experience of COVID-19 in rural Nepal.
Adolescents with disabilities and caregivers experience of COVID-19 in rural Nepal.
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DOI：
10.3389/fpubh.2023.1189067
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发表时间：
2023
影响因子：
5.2
通讯作者：
Wickenden, Mary
中科院分区：
文献类型：
--
作者：
Morrison, Joanna;Poudyal, Niraj;Pun, Insha;Prasai, Sagar;Shrestha, Nir;Khadka, Dipesh;Shrestha, Sushmita;Rohwerder, Brigitte;Wickenden, Mary
残疾、低社会经济地位、边缘化和年龄等多重脆弱性表明，中低收入国家的残疾青少年受到COVID-19大流行的独特影响。然而，关于他们的经历的研究有限。我们对尼泊尔农村丘陵地区的残疾青少年进行了参与性研究，以探索他们对这一流行病的体验，并了解如何在未来的流行病和人道主义紧急情况下为他们提供支持。我们采用定性方法，有目的地抽样不同的严重障碍的青少年从两个农村，尼泊尔的丘陵地区。我们通过半结构化访谈收集了11至17岁的5名女孩和7名男孩的数据。访谈采用了包容性、参与性和基于艺术的方法，让青少年参与进来，支持讨论，并使他们能够选择他们想讨论的内容。我们还对11名护理人员进行了半结构化访谈。我们发现，由于COVID-19缓解措施，残疾青少年及其家人经历了社会排斥和社会孤立，一些人由于对COVID-19传播的误解而经历了社会耻辱，并认为残疾青少年对COVID-19的脆弱性增加。在封锁期间与同龄人保持联系的青少年比那些与朋友隔离的青少年对大流行病有更积极的体验。他们变得与外界隔绝，因为他们离开了可以交流的人，或者搬到了偏远的农村地区与亲戚住在一起。我们发现，如果他们照顾的青少年生病，照顾者对获得医疗保健特别恐惧和焦虑。照顾者还担心，如果青少年自己生病，他们可能会受到COVID-19的影响，如果照顾者死亡，青少年可能会被忽视。有必要针对具体情况对残疾青少年进行研究，探讨他们对这一流行病的感受，以了解相互交织的脆弱性如何对残疾人等特定群体产生不利影响。残疾青少年及其照顾者必须参与制定减轻耻辱感的举措和战略，以满足他们在未来紧急情况下的需求，这对做出知情和包容的反应是必要的。
Intersecting vulnerabilities of disability, low socio-economic status, marginalization, and age indicate that adolescents with disabilities in low-and middle-income countries were uniquely affected by the COVID-19 pandemic. Yet, there has been limited research about their experience. We conducted participatory research with adolescents with disabilities in rural, hilly Nepal to explore their experience of the pandemic and inform understanding about how they can be supported in future pandemics and humanitarian emergencies. We used qualitative methods, purposively sampling adolescents with different severe impairments from two rural, hilly areas of Nepal. We collected data through semi-structured interviews with five girls and seven boys between the age of 11 and 17 years old. Interviews used inclusive, participatory, and arts-based methods to engage adolescents, support discussions and enable them to choose what they would like to discuss. We also conducted semi-structured interviews with 11 caregivers. We found that adolescents with disabilities and their families experienced social exclusion and social isolation because of COVID-19 mitigation measures, and some experienced social stigma due to misconceptions about transmission of COVID-19 and perceived increased vulnerability of adolescents with disabilities to COVID-19. Adolescents who remained connected with their peers throughout lockdown had a more positive experience of the pandemic than those who were isolated from friends. They became disconnected because they moved away from those they could communicate with, or they had moved to live with relatives who lived in a remote, rural area. We found that caregivers were particularly fearful and anxious about accessing health care if the adolescent they cared for became ill. Caregivers also worried about protecting adolescents from COVID-19 if they themselves got ill, and about the likelihood that the adolescent would be neglected if the caregiver died. Contextually specific research with adolescents with disabilities to explore their experience of the pandemic is necessary to capture how intersecting vulnerabilities can adversely affect particular groups, such as those with disabilities. The participation of adolescents with disabilities and their caregivers in the development of stigma mitigation initiatives and strategies to meet their needs in future emergencies is necessary to enable an informed and inclusive response.
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残疾和 COVID-19 大流行的“快速评估”结果综合：对响应和包容残疾的数据收集的影响。
DOI：
10.3390/ijerph18189701
发表时间：
2021-09-15
影响因子：
--
作者：
Hillgrove T;Blyth J;Kiefel-Johnson F;Pryor W
通讯作者：
Pryor W
影响因子：
3.1
作者：
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通讯作者：
Shamili, Aryan
影响因子：
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作者：
Gale NK;Heath G;Cameron E;Rashid S;Redwood S
通讯作者：
Redwood S
DOI：
10.1146/annurev-anthro-092412-155502
发表时间：
2013-01-01
期刊：
ANNUAL REVIEW OF ANTHROPOLOGY, VOL 42
影响因子：
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作者：
Ginsburg, Faye;Rapp, Rayna
通讯作者：
Rapp, Rayna
影响因子：
5.4
作者：
GILMORE, N;SOMERVILLE, MA
通讯作者：
SOMERVILLE, MA