The psychosocial impact of COVID-19 within the first six months of the pandemic on youth with epilepsy and their caregivers.
The psychosocial impact of COVID-19 within the first six months of the pandemic on youth with epilepsy and their caregivers.
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DOI：
10.1016/j.yebeh.2021.107855
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发表时间：
2021-04
期刊：
影响因子：
--
通讯作者：
Wagner JL
中科院分区：
文献类型：
--
作者：
Modi AC;Patel AD;Stevens J;Smith G;Huszti H;Guilfoyle SM;Mara CA;Schmidt M;Wagner JL
我们评估了新冠肺炎对癫痫儿童及其家庭的影响，重点是癫痫的管理、家庭常规、学习以及在大流行的前六个月内遵守疾病控制和预防中心的大流行指南(例如，社交距离、戴口罩)。此外，还根据种族和民族、医疗和/或地理服务不足以及保险状况考察了新冠肺炎对家庭影响的群体差异。参与者(n = )包括来自两个临床试验的癫痫儿童及其家人。《新冠肺炎对儿童癫痫管理的影响》量表于2020年4月至2020年9月在四家大型儿科医院的照顾者中在线实施。ICPEM的管理既发生在常规研究评估期间，也发生在大流行早期(例如，2020年4月和5月)获取信息的额外急性时间点。分析采用描述性统计和t检验。数据表明，新冠肺炎对儿童癫痫的治疗有轻微到中度的影响。据报道，癫痫儿童的照顾者对教育和社会功能的影响最大。据报道，对疾控中心指南的遵守程度很高。那些有公共保险的人报告说，与那些有私人保险的人相比，获得每日抗癫痫药物的难度更大。这项研究提供了有关新冠肺炎癫痫治疗对癫痫儿童及其家人的影响和日常功能的重要初步数据。尽管新冠肺炎限制措施的严重影响似乎是轻微到中度的，但尚不清楚这场大流行将对癫痫儿童家庭产生什么长期影响。
We assessed the impact of COVID-19 on children with epilepsy and their families, focusing on epilepsy management, family routines, learning, and adherence to Centers for Disease Control and Prevention (CDC) pandemic guidelines (e.g., social distancing, mask wearing) within the first six months of the pandemic. Group differences in COVID-19 impact on families were also examined based on race and ethnicity, being medically and/or geographically underserved, and insurance status. Participants (n = 131) included children with epilepsy and their families from two clinical trials. The Impact of COVID-19 on Pediatric Epilepsy Management (ICPEM) measure was developed and administered to caregivers online from April 2020 to September 2020 across four large pediatric hospitals. Administration of the ICPEM occurred both during routine study assessments and an additional acute time point to obtain information early in the pandemic (e.g., April and May 2020). Descriptive statistics and t-tests were used for analyses. Data indicate minor to moderate impact of COVID-19 on pediatric epilepsy management. Caregivers of children with epilepsy reported the most impact on education and social functioning. Adherence to CDC guidelines was reported to be high. Those having public insurance reported greater difficulties obtaining daily anti-seizure medications compared to those with private insurance. This study presents important initial data regarding the impact of COVID-19 epilepsy management and daily functioning in children with epilepsy and their families. While the acute impact of COVID-19 restrictions appear to be mild to moderate, it is unclear what the long-term impact of the pandemic will be on families of children with epilepsy.
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影响因子：
5.6
作者：
Bailet, LL;Turk, WR
通讯作者：
Turk, WR
DOI：
10.1016/j.japh.2016.12.065
发表时间：
2017-03-01
影响因子：
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影响因子：
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作者：
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通讯作者：
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