Exploring Sleep in Caregivers of Children with Autism Spectrum Disorder (ASD) and the Relationship to Health-Related Quality of Life (HRQoL) and Family Quality of Life (FQoL).

Exploring Sleep in Caregivers of Children with Autism Spectrum Disorder (ASD) and the Relationship to Health-Related Quality of Life (HRQoL) and Family Quality of Life (FQoL).
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DOI:
10.3390/medicina59122132
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发表时间:
2023-12-07
期刊:
Medicina (Kaunas, Lithuania)
影响因子:
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通讯作者:
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其他
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背景和目标:探讨自闭症谱系障碍(ASD)儿童照料者睡眠障碍症状的患病率以及照料者睡眠问题与其健康相关生活质量和家庭生活质量之间的关系。材料与方法:描述性横断面研究的照顾者(N = 62)的6至11岁的儿童诊断为ASD和接受照顾的区域自闭症研究和资源中心。结果如下:参与者完成了睡眠习惯问卷(SHQ)、医学结局研究(MOS)SF-12和海滩中心家庭生活质量量表(FQoL)。睡眠时间较长的照顾者报告说,他们的心理健康状况更好,家庭生活质量也更好。报告失眠症状,非恢复性睡眠和睡眠不足的照顾者比没有报告这些睡眠障碍症状的照顾者更有可能报告较差的心理健康状况。患有阻塞性睡眠呼吸暂停和不宁腿综合征的护理人员的身体生活质量更差。结论:主要照顾者的身心健康对于自闭症儿童的支持和家庭的运作至关重要。研究结果指出了未来研究和干预措施的重要性,以提高睡眠健康,从而改善ASD儿童照顾者的生活质量。
Background and Objectives: To investigate (1) the prevalence of sleep disorder symptoms in caregivers of children with autism spectrum disorder (ASD) and (2) the relationships between caregiver sleep problems and their health-related quality of life and family quality of life. Materials and Methods: Descriptive cross-sectional study of caregivers (N = 62) of children aged 6 to 11 years old diagnosed with ASD and receiving care at a regional autism research and resource center. Results: Participants completed the Sleep Habits Questionnaire (SHQ), the Medical Outcomes Study (MOS) SF-12, and the Beach Center Family Quality of Life Scale (FQoL). Caregivers with longer sleep duration reported better mental health and better family quality of life. Caregivers who reported insomnia symptoms, non-restorative sleep, and insufficient sleep were more likely to report poorer mental health than caregivers who did not report these sleep disorder symptoms. Caregivers with obstructive sleep apnea and restless legs syndrome experienced worse physical quality of life. Conclusions: The physical and mental health of the primary caregiver is essential to the support of the child with ASD and to the functioning of the family. The study findings point to the importance of future research and interventions to enhance sleep health in order to improve quality of life for caregivers of children with ASD.
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