Recruitment and retention of underrepresented and vulnerable populations to research.
Recruitment and retention of underrepresented and vulnerable populations to research.
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DOI：
10.1111/phn.12943
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发表时间：
2021-11
期刊：
影响因子：
--
通讯作者：
Shaibi GQ
中科院分区：
文献类型：
--
作者：
Langer SL;Castro FG;Chen AC;Davis KC;Joseph RP;Kim WS;Larkey L;Lee RE;Petrov ME;Reifsnider E;Youngstedt SD;Shaibi GQ
根据贝尔蒙特报告中概述的原则，涉及人类受试者的研究应最大限度地降低参与者的风险，并最大限度地提高参与者和社会的利益。参与者的招募应该公平。一旦注册，参与者有权在任何时候退出。研究人员必须平衡这些原则与压力，以满足招生目标，并在重复测量设计的背景下，保持参与者在整个时间。这种观点的目的是描述的方法和相应的活动，招聘和保留代表性不足和弱势群体，是一个跨学科的学术研究中心的重点。为了实现这一目标，我们提供了不同的学科背景，与广泛人群（从婴儿到老年人和多种健康状况）合作的经验，并跨越了各种研究设计。所提供的有效战略包括与社区实体建立伙伴关系，在潜在参与者准备就绪时与他们接触，使用适合人口的通信和数据收集模式，在熟悉的环境和方便的时间开展研究活动，保持经常联系，并提供有意义的激励措施。这些战略与现有文献中针对特定人群的报告相一致，并强调其跨领域性质，并根据参与者和社区伙伴的需求和偏好进行调整。
Per principles outlined in the Belmont Report, research involving human subjects should minimize risks to participants and maximize benefits to participants and society. Recruitment of participants should be equitable. Once enrolled, participants have the right to withdraw at any point. Researchers must balance these principles with pressures to meet enrollment goals and, in the context of repeated-measures designs, retain participants across time. The purpose of this perspective is to describe the approach and corresponding activities for recruiting and retaining underrepresented and vulnerable populations that are the focus of a transdisciplinary academic research center. To this effort, we offer diverse disciplinary backgrounds, experience working with a wide range of populations (from infants to older adults and across multiple health conditions), and spanning a variety of research designs. Effective strategies offered include partnering with community entities, approaching potential participants where they are and at a time of readiness, using population-appropriate modes of communication and data collection, conducting study activities in familiar settings and at convenient times, maintaining frequent contact, and offering meaningful incentives. These strategies are consistent with population-specific reports found in the extant literature and underscore their cross-cutting nature, with adaptations based on participant and community partner needs and preferences.
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影响因子：
2.3
作者：
Dennis, BP;Neese, JB
通讯作者：
Neese, JB
影响因子：
3.6
作者：
Carroll, Jennifer K.;Yancey, Antronette K.;Fiscella, Kevin
通讯作者：
Fiscella, Kevin
影响因子：
4.2
作者：
Engler-Stringer, Rachel;Schaefer, Joelle;Muhajarine, Nazeem
通讯作者：
Muhajarine, Nazeem
DOI：
10.1037/hea0001048
发表时间：
2021-12
期刊：
Health psychology : official journal of the Division of Health Psychology, American Psychological Association
影响因子：
--
作者：
Davis KC;Neilson EC;Kirwan M;Eldridge N;George WH;Stappenbeck CA
通讯作者：
Stappenbeck CA
DOI：
10.1016/j.socscimed.2017.11.028
发表时间：
2018-01
期刊：
Social science & medicine (1982)
影响因子：
--
作者：
Carrera JS;Brown P;Brody JG;Morello-Frosch R
通讯作者：
Morello-Frosch R