Recruitment of a hidden population: African Americans with obsessive-compulsive disorder.

Recruitment of a hidden population: African Americans with obsessive-compulsive disorder.
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DOI:
10.1016/j.cct.2011.09.001
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发表时间:
2012-01
影响因子:
2.2
通讯作者:
Franklin ME
Franklin ME
中科院分区:
医学4区
文献类型:
--
作者:
Williams MT;Proetto D;Casiano D;Franklin ME

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强迫症 (OCD) 是全世界残疾的主要原因,但由于人们知之甚少的原因,少数族裔群体在临床研究中并没有得到很好的体现。因此,尽管根据流行病学调查,非洲裔美国人的强迫症发病率相当,但临床试验结果的普遍性仍然未知。旨在改善强迫症的识别、评估和治疗的研究是一项重要的公共卫生优先事项。本研究的目的是报告用于招募非裔美国成年人参与强迫症研究的外展方法。采用了多种方法,包括广播广告、公共交通广告、社区外展和在线广告。费城宾夕法尼亚大学在 9.5 个月的时间里招募了总共 83 名非裔美国成年参与者,并进行了全面的精神病学评估。对患有强迫症症状的非裔美国人进行了可靠的识别和评估,总共有 75 名患有终生强迫症的人(4 人过去诊断,71 人当前诊断)。研究招募方法的成功率和成本效益存在差异。广播广告是最昂贵的招募方式,报纸广告占了合格参与者的最多,克雷格名单和口碑等免费方法也很有效。作者的结论是,通过集中努力,有许多有效的方法可以招募患有强迫症的非裔美国人。讨论了招聘指南,重点关注文化因素。
Obsessive-compulsive disorder (OCD) is a leading cause of disability worldwide, however for reasons that are poorly understood ethnic minority groups are not well represented in clinical research studies. Thus, although African Americans experience equivalent rates of OCD according to epidemiological surveys, the generalizability of findings from clinical trials remains unknown. Research designed to improve identification, assessment and treatment of OCD is an important public health priority. The purpose of this study is to report outreach methods used to recruit African American adults for participation in an OCD research study. A variety of methods were employed, including radio advertisements, public transportation advertising, community outreach, and online advertising. A total of 83 African American adult participants were recruited over a 9.5 month period at the University of Pennsylvania in Philadelphia, and given comprehensive psychiatric assessments. African Americans with OCD symptoms were reliably identified and assessed, for a total of 75 with lifetime OCD (4 past and 71 current diagnoses). There was variability in the success and cost effectiveness of study recruitment methods. Radio ads were the most expensive means of recruitment, newspaper ads accounted for the largest number of eligible participants, and no cost methods such as Craig’s List and word of mouth were also effective. The authors conclude that, with focused efforts, there are many effective methods for recruiting African Americans with OCD. Guidelines for recruitment are discussed, with a focus on cultural considerations.
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