Parent Empowerment in Pediatric Healthcare Settings: A Systematic Review of Observational Studies.

Parent Empowerment in Pediatric Healthcare Settings: A Systematic Review of Observational Studies.
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小儿医疗保健环境中的父母赋权:观察性研究的系统综述。

DOI:
10.1007/s40271-018-0336-2
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发表时间:
2019-04
期刊:
The patient
影响因子:
--
通讯作者:
Ray KN
Ray KN
中科院分区:
其他
文献类型:
--
作者:
Ashcraft LE;Asato M;Houtrow AJ;Kavalieratos D;Miller E;Ray KN

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家长赋权通常是临床儿科和儿科研究的明确目标,但家长赋权的前因和后果尚未明确。综合医疗保健环境中家长赋权的潜在前因和后果。纳入标准:1)关于儿童医疗保健或医疗保健提供者背景下父母赋权的研究结果; 2) 定性研究、观察性研究、此类研究的系统评价。 PubMed、Web of Science 和 Google Scholar (2006-2016) 以及参考文献列表。四十四篇文章符合纳入标准。我们确定了赋权后果的六个主题:增加父母对日常护理的参与、改善症状管理、增强信息需求和工具、增加对护理决策的参与、增加对儿童的倡导以及参与赋权他人。还出现了总结赋权前因的六个主题:父母与提供者的关系、护理过程、医疗护理经验、社区服务经验、接受信息/情感支持以及建立个人能力和叙述。我们将这些发现综合成一个概念模型,以指导未来的干预措施开发和评估。非英语文章被排除在外。家长赋权可以增强家长对日常护理和护理决策的参与,改善儿童症状,增强信息需求和技能,并增加倡导和利他行为。父母与提供者的关系和护理流程、找到合适的医疗和社区服务以及关注父母的认知和情感需求可以促进父母赋权。
Parent empowerment is often an expressed goal in clinical pediatrics and in pediatric research, but the antecedents and consequences of parent empowerment are not well established. To synthesize potential antecedents and consequences of parent empowerment in health care settings. Inclusion criteria: 1) studies with results about parent empowerment in the context of children’s health care or health care providers; and 2) qualitative studies, observational studies, systematic reviews of such studies. PubMed, Web of Science, and Google Scholar (2006–2016) and reference lists. Forty-four articles met inclusion criteria. We identified six themes within consequences of empowerment: increased parent involvement in daily care, improved symptom management, enhanced informational needs and tools, increased involvement in care decisions, increased advocacy for child, and engagement in empowering others. Six themes summarizing antecedents of empowerment also emerged: parent-provider relationships, processes of care, experiences with medical care, experiences with community services, receiving informational/emotional support, and building personal capacity and narrative. We synthesized these findings into a conceptual model to guide future intervention development and evaluation. Non-English articles were excluded. Parent empowerment may enhance parent involvement in daily care and care decisions, improve child symptoms, enhance informational needs and skills, , and increase advocacy and altruistic behaviors. Parent empowerment may be promoted by parent-provider relationship and care processes, finding the right fit of medical and community services, and attention to cognitive and emotional needs of parents.
DOI: 10.1007/s00455-009-9210-7
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