Facilitating the inclusion of adults with intellectual disability as direct respondents in research: Strategies for fostering trust, respect, accessibility and engagement.
Facilitating the inclusion of adults with intellectual disability as direct respondents in research: Strategies for fostering trust, respect, accessibility and engagement.
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DOI：
10.1111/jar.12936
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发表时间：
2022-01
期刊：
影响因子：
--
通讯作者：
Olick RS
中科院分区：
文献类型：
--
作者：
McDonald KE;Gibbons C;Conroy N;Olick RS
有智力残疾的成年人在健康和健康结果的社会决定因素方面存在差异。虽然新知识可以促进健康公平，但智力残疾的成年人经常被排除在研究的直接受访者之外。要将他们纳入社会，就必须解决导致他们被排斥在外的科学和伦理挑战。我们描述了我们的多阶段的过程，包括社区参与，制定一个自我报告的调查，为智力残疾的成年人和分享的结果，从机构民族志进行，以确定促进包容性的战略。我们还评估了这些战略的质量指标。我们确定建立信任，尊重，设计无障碍，最大限度地提高灵活性，并允许个性化的住宿作为促进包容性的战略。多项指标验证了这些战略的有效性。研究人员可以通过专注于促进可访问性，信任，尊重和参与来促进第一人称决策和直接参与研究。
Adults with intellectual disability experience disparities in social determinants of health and health outcomes. While new knowledge can advance health equity, adults with intellectual disability are frequently excluded from being direct respondents in research. Their inclusion requires addressing scientific and ethical challenges that contribute to their exclusion. We describe our multi-phased process, inclusive of community-engagement, to develop a self-report survey for adults with intellectual disability and share findings from an institutional ethnography conducted to identify strategies for facilitating inclusion. We also assessed indicators of the quality of these strategies. We identified building trust, showing respect, designing in accessibility, maximizing flexibility, and allowing individualized accommodations as strategies that foster inclusion. Multiple indicators validate the effectiveness of these strategies. Researchers can promote first-person decision-making and direct research participation by focusing on promoting accessibility, trust, respect, and engagement.
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发表时间：
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影响因子：
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作者：
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DOI：
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发表时间：
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期刊：
Journal of intellectual disability research : JIDR
影响因子：
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