Community-based dialogue: engaging communities of color in the United states' genetics policy conversation.
Community-based dialogue: engaging communities of color in the United states' genetics policy conversation.
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DOI:
10.1215/03616878-2009-009
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发表时间:
2009-06
期刊:
影响因子:
--
通讯作者:
Fleck LM
中科院分区:
文献类型:
--
作者:
Bonham VL;Citrin T;Modell SM;Franklin TH;Bleicher EW;Fleck LM
Engaging communities of color in the genetics public policy conversation is important for the translation of genetics research into strategies aimed at improving the health of all. Implementing model public participation and consultation processes can be informed by the Communities of Color Genetics Policy Project, which engaged individuals from African American and Latino communities of diverse socioeconomic levels in the process of “rational democratic deliberation” on ethical and policy issues stretching from genome research to privacy and discrimination concerns to public education. The results of the study included the development of a participatory framework based on a combination of the theory of democratic deliberation and the community-based public health model which we describe as “community-based dialogue.”
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