Twitter Trends for Celiac Disease and the Gluten-Free Diet: Cross-sectional Descriptive Analysis.
Twitter Trends for Celiac Disease and the Gluten-Free Diet: Cross-sectional Descriptive Analysis.
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DOI：
10.2196/37924
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发表时间：
2022-07
期刊：
影响因子：
--
通讯作者：
Coburn, Shayna Skelley
中科院分区：
文献类型：
--
作者：
Germone, Monique;Wright, Casey D.;Kimmons, Royce;Coburn, Shayna Skelley
关键词：
很少有研究系统地分析了社交媒体上有关慢性疾病和可用治疗的信息。腹腔疾病（CD）是需要调查基于网络的教育资源的一个范例。CD是一种自身免疫性疾病，其中谷蛋白的摄入导致肠道损伤，如果不通过严格的无谷蛋白饮食（GFD）治疗，可能导致显著的营养缺乏，从而导致癌症、骨病和死亡。由于成本和负面的污名，包括关于麸质是什么以及谁应该避免它的错误信息，遵守GFD可能很困难。鉴于负面污名和常见误解对CD治疗的重大影响，选择这种情况系统地调查通过社交媒体传播的来源和信息的范围和性质。为了解决与教育社交媒体来源相关的问题，本研究探讨了社交媒体平台Twitter上关于CD和GFD的趋势，以确定主要影响者以及这些影响者传播的信息类型。这项横断面研究使用数据挖掘来收集8个月内使用#celiac和#glutenfree标签的推文和用户。然后分析推文，以描述谁通过该平台传播信息以及这些信息的内容，来源和频率。无麸质（每天1501.8条推文）发布的内容比乳糜泻（每天69条推文）更多。很大一部分内容是由一小部分贡献者制作的（即“超级用户”），可以归类为自我推销者（例如，博客，作家，作者;#无麸质推文的13.9%和#乳糜泻推文的22.7%），自我认同的女性家庭成员（例如，母亲;#无麸质推文的4.3%和#乳糜泻推文的8%），或商业实体（例如，餐馆和面包店）。另一方面，相对较少的自我认定的科学，非营利和医疗提供者用户在Twitter上做出了与GFD或CD相关的实质性贡献（分别为#glutenfree tweets的1%和#celiac tweets的3.1%）。Twitter上的大多数材料都是由自我推销者、商业实体或自我认定的女性家庭成员提供的，这些材料可能没有得到当前医学和科学实践的支持。研究人员和医疗服务提供者可能会受益于为这一领域做出更多贡献，以增强患者和家庭的网络资源。
Few studies have systematically analyzed information regarding chronic medical conditions and available treatments on social media. Celiac disease (CD) is an exemplar of the need to investigate web-based educational sources. CD is an autoimmune condition wherein the ingestion of gluten causes intestinal damage and, if left untreated by a strict gluten-free diet (GFD), can result in significant nutritional deficiencies leading to cancer, bone disease, and death. Adherence to the GFD can be difficult owing to cost and negative stigma, including misinformation about what gluten is and who should avoid it. Given the significant impact that negative stigma and common misunderstandings have on the treatment of CD, this condition was chosen to systematically investigate the scope and nature of sources and information distributed through social media. To address concerns related to educational social media sources, this study explored trends on the social media platform Twitter about CD and the GFD to identify primary influencers and the type of information disseminated by these influencers. This cross-sectional study used data mining to collect tweets and users who used the hashtags #celiac and #glutenfree from an 8-month time frame. Tweets were then analyzed to describe who is disseminating information via this platform and the content, source, and frequency of such information. More content was posted for #glutenfree (1501.8 tweets per day) than for #celiac (69 tweets per day). A substantial proportion of the content was produced by a small percentage of contributors (ie, “Superuser”), who could be categorized as self-promotors (eg, bloggers, writers, authors; 13.9% of #glutenfree tweets and 22.7% of #celiac tweets), self-identified female family members (eg, mother; 4.3% of #glutenfree tweets and 8% of #celiac tweets), or commercial entities (eg, restaurants and bakeries). On the other hand, relatively few self-identified scientific, nonprofit, and medical provider users made substantial contributions on Twitter related to the GFD or CD (1% of #glutenfree tweets and 3.1% of #celiac tweets, respectively). Most material on Twitter was provided by self-promoters, commercial entities, or self-identified female family members, which may not have been supported by current medical and scientific practices. Researchers and medical providers could potentially benefit from contributing more to this space to enhance the web-based resources for patients and families.
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影响因子：
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作者：
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DOI：
10.3390/ijerph17041153
发表时间：
2020-02-01
影响因子：
--
作者：
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通讯作者：
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