Telehealth Support for Dementia Caregivers During the COVID-19 Pandemic: Lessons Learned From the NYU Family Support Program.
Telehealth Support for Dementia Caregivers During the COVID-19 Pandemic: Lessons Learned From the NYU Family Support Program.
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DOI：
10.1016/j.jagp.2022.08.005
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发表时间：
2023-01
影响因子：
7.2
通讯作者：
Mittelman, Mary S.
中科院分区：
文献类型：
--
作者：
O'Connor, Maureen K.;Nicholson, Roscoe;Epstein, Cynthia;Donley, Tiffany;Salant, Rebecca;Nguyen, Andrew H.;Shirk, Steven;Stevenson, Elizabeth;Mittelman, Mary S.
为了应对2019冠状病毒病大流行期间痴呆症护理人员的需求，纽约大学Langone阿尔茨海默病及相关疾病家庭支持计划（FSP）迅速过渡到在线提供大部分服务。为了了解痴呆症照顾者在切换到视频远程医疗后如何体验FSP服务，我们对配偶或伴侣痴呆症照顾者进行了定性访谈。从痴呆症配偶或伴侣照顾者的便利样本中招募了10名参与者，他们在大流行期间使用了一种或多种在线FSP服务。护理人员于2020年5月至6月期间通过视频会议进行了半结构化访谈。根据框架分析的原则对访谈进行定性分析。照顾者对大流行前的FSP表示高度满意，并在在线提供服务时继续感到支持。他们过渡到视频远程医疗服务几乎没有困难。虽然视频远程医疗经常被认为对农村社区，社会经济弱势群体或居家个人有益，但我们的研究结果表明，视频远程医疗对痴呆症护理人员也有利，因为他们有独特的障碍，包括由于承担责任而缺乏时间，缺乏对痴呆症患者的喘息护理，以及旅行时间的额外负担，以获得面对面的服务。
In response to the needs of dementia caregivers during the COVID-19 pandemic, the NYU Langone Alzheimer's Disease and Related Disorders Family Support Program (FSP) quickly transitioned to providing most services online. To understand how dementia caregivers experienced FSP services after the switch to video telehealth, we conducted qualitative interviews of spouse or partner dementia caregivers. Ten participants were recruited from a convenience sample of dementia spouse or partner caregivers who used one or more online FSP services offered during the pandemic. Caregivers engaged in semi-structured interviews held via videoconference between May and June 2020. Qualitative analysis of interviews was conducted according to the principles of framework analysis. Caregivers reported high satisfaction with the FSP pre-pandemic and continued to feel supported when services were provided online. They transitioned to video telehealth services with little difficulty. While video telehealth is frequently cited as beneficial for those in rural communities, socioeconomically disadvantaged groups, or homebound individuals, our findings suggest that video telehealth is also advantageous for dementia caregivers, given their unique barriers, including lack of time due to caregiving responsibilities, lack of respite care for the person with dementia, and the additional burdens of travel time to access in-person services.
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