Variables associated with communicative participation in Parkinson's disease and its relationship to measures of health-related quality-of-life.
Variables associated with communicative participation in Parkinson's disease and its relationship to measures of health-related quality-of-life.
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DOI：
10.1080/17549507.2016.1193900
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发表时间：
2017-08
影响因子：
1.8
通讯作者：
Yorkston KM
中科院分区：
文献类型：
--
作者：
McAuliffe MJ;Baylor CR;Yorkston KM
与帕金森氏病（PD）相关的沟通障碍往往会导致生活角色的参与受到限制，但对影响因素的了解有限，而且可用的定量测量工具很少。本研究旨在确定与PD沟通参与相关的变量，并检查沟通参与项目库（CPIB）和现有的健康相关生活质量（HRQOL）措施之间的关系。分析了来自美国和新西兰的378名PD参与者的自我报告数据。数据包括对CPIB、PD问卷-8、来自患者报告结局测量信息系统（PROMIS）的全球健康工具子量表和其他自我报告工具的回答。更大的感知言语障碍，较低水平的语言使用，疲劳，认知和情感问题，吞咽困难与较低水平的沟通参与。参与者的年龄显着影响调查结果，与居住国，性别和语言使用的相互作用。CPIB评分与HRQOL指标中度相关。PD中的沟通参与是复杂的，受人口统计学和基于疾病的变量的影响，需要更广泛地了解PD患者的沟通经验。建议将沟通参与作为现有HRQOL措施的一个单独结构进行测量。
Communication disorders associated with Parkinson’s disease (PD) often lead to restricted participation in life roles, yet there is a limited understanding of influencing factors and few quantitative measurement tools available. This study aimed to identify variables associated with communicative participation in PD, and to examine the relationship between the Communicative Participation Item Bank (CPIB) and existing health-related quality of life (HRQOL) measures. Self-report data from 378 participants with PD from the United States and New Zealand were analysed. Data included responses to the CPIB, PD Questionnaire-8, sub-scales of the Global Health instrument from the Patient Reported Outcomes Measurement Information System (PROMIS), and additional self-report instruments. Greater perceived speech disorder, lower levels of speech usage, fatigue, cognitive and emotional problems, and swallowing difficulties were associated with lower levels of communicative participation. Participants’ age significantly influenced findings, interacting with country of residence, sex, and speech usage. Scores on the CPIB were moderately correlated with HRQOL measures. Communicative participation in PD is complex and influenced by both demographic and disease-based variables, necessitating a broader view of the communicative experiences of those with PD. Measurement of communicative participation as a separate construct to existing HRQOL measures is recommended.
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影响因子：
4.4
作者：
Cedarbaum, JM;Stambler, N;Nakanishi, A
通讯作者：
Nakanishi, A
DOI：
10.1044/1058-0360(2011/10-0079
发表时间：
2011-08-01
影响因子：
2.6
作者：
Baylor, Carolyn;Hula, William;Yorkston, Kathryn
通讯作者：
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作者：
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影响因子：
3.3
作者：
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通讯作者：
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影响因子：
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作者：
Miller, N;Noble, E;Burn, D
通讯作者：
Burn, D