Profile of social self-management practices in daily life with Parkinson's disease is associated with symptom severity and health quality of life.

Profile of social self-management practices in daily life with Parkinson's disease is associated with symptom severity and health quality of life.
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DOI:
10.1080/09638288.2020.1741035
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发表时间:
2021-11
影响因子:
2.2
通讯作者:
Naumova EN
Naumova EN
中科院分区:
医学3区
文献类型:
--
作者:
Tickle-Degnen L;Stevenson MT;Gunnery SD;Saint-Hilaire M;Thomas CA;Sprague Martinez L;Habermann B;Naumova EN

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社会参与是健康老龄化的关键决定因素,但人们对帕金森病患者如何管理社会生活知之甚少。这项研究描述了社会自我管理实践的个体差异及其与症状严重程度和健康生活质量的关系。帕金森病患者(N = 90)完成了健康常规、活动和关系、症状严重程度和健康相关生活质量的测量。聚类分析确定了社会自我管理实践的概况。方差分析测试了症状严重程度和健康生活质量之间的差异。参与者根据三种实践的不同组合分为七组之一:卫生资源利用,家庭和社区活动,社会支持关系。最健康的集群在所有三个实践中的参与程度均高于样本平均水平。四个集群,从事或高于样本平均水平的活动,在家庭和社区经历了较少的健康问题比三个集群,从事低于平均水平。与健康无关的社会生活方式方面的变化似乎也有助于个人资料的多样性。研究结果提供了对帕金森病患者如何参与社会自我管理资源的相似性和变化的深入了解,并指出以人为本的干预措施。
Social participation is a key determinant of healthy aging, yet little is known about how people with Parkinson’s disease manage social living. This study describes individual differences in social self-management practices and their association with symptom severity and health quality of life. People with Parkinson’s disease (N = 90) completed measures of healthy routines, activities and relationships, symptom severity and health related quality of life. Cluster analysis identified profiles of social self-management practices. Analysis of variance tested differences between profiles in symptom severity and health quality of life. Participants clustered into one of seven groups according to different combinations of three practices: health resources utilization, activities in home and community, and social support relationships. The healthiest cluster engaged equally in all three practices at above sample average degree of engagement. Four clusters that engaged at or above sample average in activities in home and community experienced less health problems than three clusters that engaged below average. Variation in aspects of social lifestyle unrelated to health appeared also to contribute to profile diversity. Findings provide insight into similarity and variation in how people with Parkinson’s disease engage with social self-management resources and point to person-centered interventions.
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